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Your Parkinson's News Update for the Week of 7/13/20

Monday July 13, 2020
Michael J. Fox Foundation Releases First and Largest Data Set of Self-Reported Outcomes on COVID-19 and Parkinson's
"In Fox Insight's coronavirus survey, 51 people with Parkinson's reported a COVID-19 diagnosis, making this study the largest group of people with PD and COVID-19 in research to date. The survey revealed that during a COVID-19 infection, 55 percent of people with Parkinson's reported worsening of an existing motor symptom (i.e., tremor, slowness, imbalance) and more than 50 percent reported worsening of non-motor symptoms (i.e., mood issues, digestive problems, pain and fatigue)."
"Having COVID with Parkinson's was unsettling, because doctors still don't know much about how these two diseases interact," said Dan Morris, NW Parkinson's community member and a person with Parkinson's who had COVID-19. "My tremor got worse with COVID and there was nothing to show if other people with [Parkinson's] were also experiencing this. I submitted my survey to Fox Insight because I wanted my experience to add up to something bigger."
Current and Projected Future Economic Burden
of Parkinson’s in the U.S.
"The economic burden of PD was previously underestimated...We estimated a U.S. prevalence of approximately one million individuals with diagnosed Parkinson’s in 2017 and a total economic burden of $51.9 billion. The total burden of Parkinson's includes direct medical costs of $25.4 billion and $26.5 billion in indirect and non-medical costs, including an indirect cost of $14.2 billion people with Parkinson's and caregiver burden combined), non-medical costs of $7.5 billion, and $4.8 billion due to disability income received by people with Parkinson's."
Parkinson's Foundation Announces Results of
PD GENEration Pilot Study
PR Newswire
PD GENEration is a first-of-its kind national initiative that offers free genetic testing of clinically relevant Parkinson's-related genes and free genetic counseling to help participants better understand their results. The preliminary findings from the pilot study, launched in 2019, demonstrate the feasibility to conduct comprehensive genetic testing and genetic counseling for the larger Parkinson's community, as well as the identification of rare genetic mutation carriers linked to Parkinson's.