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Parkinson’s not a joke

Wednesday November 22, 2006

Sarah Johnson

November 17, 2006(Ledger Dispatch) - If only our Parkinson’s symptoms weren’t real!

Anyone suffering from a progressive, degenerative neurological disease knows the heartbreak of recognizing how the disease robs us of our abilities sometimes slowly over time, sometimes quickly.

Those of us who are afflicted with Parkinson’s Disease face untold pain and loss as Parkinson’s Disease runs its course in each of us. Usually, we start with our movements slowing down, tremors shake one side of our body, our muscles become rigid, frequently an arm hangs useless and we drag one leg. Our handwriting gets smaller and smaller until it is unreadable. Our balance is off and we begin to fall. In fact, before treatment, many of us appear to have had a stroke.

Parkinson’s is a difficult disease to diagnose and even more difficult to treat. Parkinson’s Disease does not go into remission and currently has no cure. For many people, the symptoms disappear with medication, but for many others, the medications will cease to become effective at some point. The shaking, the violent twisting of the body, the frantic flailing of arms is not controllable in those whose medications have quit working. Is it any wonder that Parkinson’s patients don’t want to leave their homes? Who wants to be stared at and made fun of? Especially by a so-called media professional!

I wish it were possible to wish away my symptoms! I wish everyone who has this dreaded disease could have their movements controlled by medications. I wish those in the media who have suggested that we are "acting" would be taken off the air, taken out of print and be forbidden to speak again!

Recent News

Aug 22 - Parkinson's Disease Could Be Diagnosed Through Eye Check, Mice Help Researchers In Further Study
Aug 22 - Machine learning to unlock Parkinson's disease mystery
Aug 21 - Cognitive control plays major role in Parkinson’s Gait
Aug 15 - 'I've Never Felt Constrained': After Parkinson's Diagnosis, Chestnut Hill Man Turns To Drumming
Aug 11 - Virtual reality and treadmill training could help prevent falls in older adults
Aug 9 - New laboratory model replicates early phase of Parkinson's before onset of motor symptoms
Aug 8 - Marshall University Scientists Develop A New Approach For Parkinson’s Disease Therapy
Aug 5 - Cambuslang woman diagnosed with Parkinson's at 42 is set to trek through Alps
Aug 4 - Active Music Therapy May Be Beneficial in Parkinson's
Aug 1 - Mini-Brains? Scientists Grow Rice Grain-Sized Brains to Aid Parkinson’s Research
Jul 30 - Lab method sheds light on how genetic mutations cause inherited Parkinson's disease
Jul 27 - Indicators of Parkinson's disease risk found in unexpected places
Jul 24 - Parkinson's: Mutant gene interaction may pave the way for new treatments
Jul 22 - Boxing training used to fight against Parkinson's disease
Jul 17 - Stem cell treatment breakthrough could cure Parkinson’s patients
Jul 14 - Cancer drug shows early promise for Parkinson's disease
Jul 13 - Opinion: Dividing the Caregiving Responsibilities Between Siblings
Jul 12 - Researchers make advance in possible treatments for Gaucher, Parkinson’s diseases
Jul 11 - Parkinson’s Head Trauma Link Looks Even Stronger
Jul 7 - Penn students’ start-up XEED puts wearables to work against Parkinson’s disease