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Parkinson’s not a joke
Wednesday November 22, 2006
November 17, 2006(Ledger Dispatch) - If only our Parkinson’s symptoms weren’t real!
Anyone suffering from a progressive, degenerative neurological disease knows the heartbreak of recognizing how the disease robs us of our abilities sometimes slowly over time, sometimes quickly.
Those of us who are afflicted with Parkinson’s Disease face untold pain and loss as Parkinson’s Disease runs its course in each of us. Usually, we start with our movements slowing down, tremors shake one side of our body, our muscles become rigid, frequently an arm hangs useless and we drag one leg. Our handwriting gets smaller and smaller until it is unreadable. Our balance is off and we begin to fall. In fact, before treatment, many of us appear to have had a stroke.
Parkinson’s is a difficult disease to diagnose and even more difficult to treat. Parkinson’s Disease does not go into remission and currently has no cure. For many people, the symptoms disappear with medication, but for many others, the medications will cease to become effective at some point. The shaking, the violent twisting of the body, the frantic flailing of arms is not controllable in those whose medications have quit working. Is it any wonder that Parkinson’s patients don’t want to leave their homes? Who wants to be stared at and made fun of? Especially by a so-called media professional!
I wish it were possible to wish away my symptoms! I wish everyone who has this dreaded disease could have their movements controlled by medications. I wish those in the media who have suggested that we are "acting" would be taken off the air, taken out of print and be forbidden to speak again!
Recent NewsSep 12 - Australian Researchers Develop New Diagnostic Tool to Spot Early Signs of Parkinson’s
Sep 11 - GeneFo Webinar to Focus on Using Humor to Manage Parkinson’s Disease
Sep 6 - Parkinson’s and the ‘D’ word
Sep 6 - Compounds in Asthma Drugs Might Be Used as Parkinson’s Treatment
Sep 5 - AstraZeneca Joins Takeda, Berg to Advance Development of Parkinson’s Disease Therapies
Sep 1 - Stem Cell Transplant Trial in Parkinson’s Patients Planned After Test in Japan Succeeds in Monkeys
Sep 1 - Titan to Start Phase 1/2 Study of Subdermal Implant to Deliver Requip to Parkinson’s Patients
Aug 30 - FDA Refuses Acorda’s Inbrija New Drug Application Due to Manufacturing Questions
Aug 23 - Support Groups: Are They for You?
Aug 22 - Internet Visits with Parkinson’s Specialist Can Be as Effective as In-person Visits, Trial Finds
Aug 21 - Cavion’s New CMO to Lead Cav3 Platform Development for Neurological Diseases
Aug 15 - Singing Helps Early-stage Parkinson’s Patients Retain Speech, Respiratory Control, Studies Show
Aug 14 - 16 Tips to Increase Your Mobility Confidence While Living With Parkinson’s Disease
Aug 10 - Boxers are fighting back against Parkinson’s
Aug 9 - Parkinson’s Experiment to Be Aboard Next Flight to International Space Station
Aug 9 - Parkinson’s Disease and Sleeping with the Enemy
Aug 7 - The Importance of Oral Health in Parkinson’s Disease
Aug 7 - Researchers Gain Better Insight Into Alpha-Synuclein’s Role in Parkinson’s Disease
Jul 31 - New Digital Cognitive Assessment Tool Receives Positive FDA Review
Jul 20 - Parkinson’s DREAM Challenge Uses Mobile Sensor Data to Monitor Health Based on Movement