NWPF

News ArchivesRead News

HELPING HANDS: The Parkinson’s Club

Thursday December 15, 2005

12/11/05(The Malay Mail) - The Malaysian Parkinson’s Disease Association (MPDA), is hoping to establish the Parkinson’s Club for all Malaysians affected by this brain disorder and their family members.

As Malaysians age, Parkinson’s Disease (PD), a brain disorder that affects many after the age of 60, is becoming a major health burden. It is estimated that about 10,000 Malaysians currently suffer from PD, with tremors (trembling of hands) and slowness of movement.

As there is no cure for PD and the proportion of elderly people in the population is increasing, the number of PD patients is expected to rise.

Dr Chew Nee Kong, Medical Adviser to the MPDA, says the Parkinson’s Club, (PC) which is the first of its kind in Malaysia, seeks to complement hospital services by providing rehabilitative therapy and education to relieve the patient load.

More importantly, the PC will be a place where Parkinson’s patients can meet for companionship and sharing.

“Social isolation is one of the most common problems faced by Parkinson’s patients,” explains Dr Chew.

Most PD patients also suffer from anxiety and depression. The support group can help them to accept and cope with their illness.

“Just talking to each other is a form of therapy – something we cannot provide in hospital,” stresses Dr Chew.

Group discussions and group therapy will also be organised to talk about various aspects of PD to help patients and caregivers understand the illness and learn how to cope with the problems.

The PC will also serve as a Secretariat for the MPDA, with more effective co-ordination of all educational and social activities of the MPDA.

The clubhouse, which is situated at 35 Jalan Nyaman 10, Happy Garden, Kuala Lumpur, is scheduled to open by January 1.

MPDA hopes to include a gymnasium equipped with various rehabilitative aids, such as parallel bars, weight-lifting machine and gym balls, for patients undergoing physiotherapy and rehabilitation.

MPDA is also looking for materials for a mini-library, rest area and entertainment room – including a television set, radio and board games

The PC will operate from 10am to 4pm, Tuesday to Saturday.

You can either donate the items needed for the PC or contribute towards the running expenses.

For details, contact Dr Chew Nee Kong, Medical Adviser, MPDA at (03) 2096-2246, or e-mail: nkchew33@hotmail.com.

Recent News

Oct 18 - Fighting Parkinson's disease through dance
Oct 18 - Brain disconnections may contribute to Parkinson's hallucinations
Oct 17 - Scientists Identify Structure of PINK1, Key Parkinson’s-protective Protein
Oct 17 - Diabetes drug cuts Parkinson's risk by 28 percent, study finds
Oct 10 - Advances in Brain Pacemaker Reduces Tremors, Helps Parkinson's Sufferers Live a More Normal Life
Oct 10 - Medical History Could Help Predict Parkinson's Disease Risk Long Before Diagnosis
Oct 3 - Changes in Olfactory Bulb Explain Loss of Smell in Early Stages of Parkinson’s Disease, Study Finds
Oct 3 - Sleep Disturbances May Worsen Motor Symptoms in Parkinson’s Disease, Study Suggests
Sep 12 - Australian Researchers Develop New Diagnostic Tool to Spot Early Signs of Parkinson’s
Sep 11 - GeneFo Webinar to Focus on Using Humor to Manage Parkinson’s Disease
Sep 6 - Parkinson’s and the ‘D’ word
Sep 6 - Compounds in Asthma Drugs Might Be Used as Parkinson’s Treatment
Sep 5 - AstraZeneca Joins Takeda, Berg to Advance Development of Parkinson’s Disease Therapies
Sep 1 - Stem Cell Transplant Trial in Parkinson’s Patients Planned After Test in Japan Succeeds in Monkeys
Sep 1 - Titan to Start Phase 1/2 Study of Subdermal Implant to Deliver Requip to Parkinson’s Patients
Aug 30 - FDA Refuses Acorda’s Inbrija New Drug Application Due to Manufacturing Questions
Aug 23 - Support Groups: Are They for You?
Aug 22 - Internet Visits with Parkinson’s Specialist Can Be as Effective as In-person Visits, Trial Finds
Aug 21 - Cavion’s New CMO to Lead Cav3 Platform Development for Neurological Diseases
Aug 15 - Singing Helps Early-stage Parkinson’s Patients Retain Speech, Respiratory Control, Studies Show