PD Community BlogRead Blog

You, Me & Parkinson Pete: on Living & Dying with Parkinson's

Monday January 25, 2021

Peter G. Beidler and his latest book, Parkinson Pete on Living & Dying with Parkinson's Disease


The scene is fall. Big leaf maples are gracefully shedding their color around Seattle's Wallingford neighborhood. Inside a local bakery, people sit, stand, roll, and sway to the tune of something unexpected (especially when the acoustic guitar comes out). Some have traveled 10 minutes to be here, others an hour. This is a group brought together by Parkinson's. 


I met Peter G. Beidler in October of 2013, when I first interned with the Northwest Parkinson's Foundation (NW Parkinson's). We were enjoying pastries and coffee with a fledgling group called the Parkinson's Cafe. At the center of this social hour was Pete: bright, kind, and quick. 

Pete will be the first to describe how he has (and hasn't) changed over the course of living with Parkinson's. He does so, carefully and brilliantly, in his latest book: "Parkinson Pete on Living and Dying with Parkinson's Disease" (2020). Significantly, Pete also shares his insight on that other half of Parkinson's: dying. This read is not always easy for the daughter of a person with Parkinson's; it is, however, consistently helpful, motivating, and funny. I'm lucky to know the author of this important book.

You can purchase "Parkinson Pete on Living and Dying with Parkinson's Disease" (2020) directly from Coffeetown Press here, and from Amazon, here. Thanks to the author, NW Parkinson's can also lend you a copy, no charge, when you reach out to us here: info@NWPF.org | 206.748.9481

In bold are my questions (Bette Jane Camp) and Peter Beidler's answers flow unbolded. I hope you enjoy and take away as much from our interview as I did!


1. Pete, for many of us, you are our shepherd. In your first book about your disease, Parkinson Pete’s Bookshelves: Reviews of Eighty-nine Books about Parkinson’s Disease (2018), you introduced us to what other writers have said about the disease. Now, in Parkinson Pete on Living and Dying with Parkinson’s Disease (2020), you take us along on your own journey:

“As I approach the end of my life, it seems natural to want to leave behind some signposts to mark the Parkinson’s trail for those who come after.”

Before your diagnosis fifteen years ago, did you think of yourself as being on a path needing signposts?

Goodness, no. For forty years I worked as an English professor at Lehigh University. That academic pathway was well-lit and needed no new signposts. But just as I retired, I was diagnosed with this strange and frightening disease called Parkinson’s. I knew no one in Pennsylvania with Parkinson’s except my older sister, and my symptoms were different from hers. Besides, right about then Anne and I moved to Seattle, where I knew no one with my disease. I was pretty scared. It felt like I was the only person in the Parkinson’s forest.

Then I saw a notice about a HOPE Conference® for people with Parkinson's. I signed up. When I walked into that huge roomful of people, I suddenly knew that I was not alone in the Seattle Parkinson’s forest, but one of many. We all help each other grope our way through the un-signposted forest.

Eventually, after volunteering with local Parkinson's nonprofits, someone at NW Parkinson's got me started reading recent books about Parkinson’s and writing reviews for their web site. Reading all those books made me realize the need for signposts especially about the late stages of the disease.

These books all tended to give cheerful and optimistic advice about the easy early stages, but they had almost nothing to say about how to deal with the difficult later stages. Typically the writers said something optimistic about the cure that was “just around the corner” and the need for more donations to pay for research that would speed up the discovery of the cure. The idea seemed to be that after that elusive cure had been found, we patients would be fine and there would be no later stages of the disease. The cure never came, but the later stages did.

I found researchers writing books about exercise, about how to live well with Parkinson’s, about fighting the disease, about nutrition, and so on. But still I found almost nothing about those nasty late stages and the slow wasting away that typically precede a Parkinson’s death. I decided to try to write a book that would include material that no one else wanted to write about. I wanted to give a few signposts through that dark part of the forest. To do so, I gave myself the pseudonym “Parkinson Pete.” Because I have a doctoral degree in English literature, some people call me “Dr. Beidler.” The “Parkinson Pete” is my way of letting people know that I am just another patient. I don’t want people to think I am a medical doctor or that I write with any particular authority about this disease.

2. The first half of your book, on living with Parkinson’s, recounts your early experiences with the disease and your discovery of useful tools for dealing with it. I can easily picture your confused and conflicted feelings in the hours, months, and years after that doctor in Philadelphia told you that you had Parkinson’s. You wobbled from denial to self-pity to anger to shame to something like pride as you gave yourself the pseudonym “Parkinson Pete.” By taking on that title, you are demonstrating your ability to be Dr. Peter G. Beidler AND someone with Parkinson’s. You’re a husband, dad, grandpa, writer, friend, volunteer, carpenter, wood carver, and so on. In knowing you and in reading your book, I understand that Parkinson’s doesn’t take over your whole identity.

Can you offer insight into how a person can begin to grapple with this change in who they thought they were? How can we still be ourselves, still be Jose or Sally or Pete, if we have Parkinson’s? How can we feel more human in face of Parkinson’s?

Actually, the fact that Parkinson’s is such a gradual disease makes it relatively easy to hold on to our original selves as we shift full bore into our Parkinson’s roles. By the time we suspect that something is neurologically amiss, we have probably had the disease for a decade. Then, after we know about it, we can usually hold off for at least another five years telling most others about it. I was able to stay pretty active with my carpentry projects, wood-carving, traveling, writing, and social life until only few years ago. Parkinson’s is nice that way. Unlike some diseases, it does not swoop in like an eagle to carry off the person we thought we were. Rather, it sneaks in and quietly nibbles away at the edges who we are. It challenges us but it does not steal our essential humanity. It makes us, if anything, more human by giving us time to broaden our ideas about what it is to be human.

3. Humor is integral to your book and your life. Frankly, Pete, when I think of you, I think of the wry smile that follows one of your quick-witted jokes. “What’s So Funny?” is a chapter dedicated to Parkinson’s puns and ironies. How would you define a Parkinson’s joke? And what is it about adversity that brings out this wink, this grin, in the face of life-altering difficulty?

A Parkinson’s joke is a little story that makes us laugh about something awful that happened to a person with Parkinson’s. What is funny about an amputated arm and leg? What is funny about incontinence, about sleeping in the bathtub to avoid wetting the bed, about selecting the most effective adult diapers, about falling in the mud as you rush to an appointment with your manicurist, about drowning your iPhone in a pedicure tub, about having your husband fix your bra with masking tape in a public place?

Did you hear about Sam, the veterinarian who noticed a recurring twitch in his left pinky finger and a recurring cramp in his left ankle? He went to a doctor, who examined him and told him, “You have Parkinson’s, a slow-moving, incurable, neurological disease. Typically it presents itself on one side and then gradually moves to the other side.” Sam decided to take action to keep the contagion from spreading. He went back to his pet hospital and had his assistant amputate his left arm at the shoulder and his left leg at the hip. He’s all right now.

For the humor in those other situations—incontinence, selecting the adult diapers, falling in the mud, drowning the iPhone, fixing the bra—see Sheryl Jedlinski’s 2018 book, "Parkinson’s? You’re Kidding Me, Right?: One Woman’s Unshakable Belief in Overcoming a Shaky Diagnosis". Jedlinski writes with refreshing humor about many of her own experiences with Parkinson’s: “People ask why so many funny things happen to me. I tell them these things happen to everyone, but most of us don’t see the humor in situations when we are in the middle of them, especially not when they drop their iPhone in the pedicure tub” (p. 126).

Awful things happen to all of us: the time your ran car into Gusto, your kid sister’s new rocking-horse toy; the time your coach cut you from the team for referring to the center on the visiting team as a “bean-pole scarecrow”; the time your girlfriend’s puppy ran off with your underwear; the time you tripped on a root and smashed your only pair of glasses; the time you set out to drown in South Lake Union but wound up with a hamburger and fries instead.

A life without adversity is a boring life. Adversity challenges us to find a way to triumph over it, if only by winking and grinning at it.

4. One of my favorite chapters in your book, “How You Can Help,” offers practical suggestions for the care-partners, children, siblings, parents, neighbors, friends, and co-workers of people with Parkinson’s. I’m curious: did you collaborate with your wife Anne on this chapter?

In a general sense, yes. Anne, my wife of some fifty-eight years, helps me in hundreds of ways. Some of the chores that I used to do she now does: drive the car, put the trash out Monday evening, deal with automobile maintenance issues, wash the dishes. She would do even more, but I have needed to tell her that it is best if I do as much as I can for as long as I can. I make my own breakfasts, handle the family finances and income tax stuff, occupy myself with my small reading and writing projects.

I fall a lot now. When the falling started, Anne would take my hand and try to keep me vertical. Sometimes she succeeded, but sometimes I would pull her down. I had to ask her not to try to keep me from falling by holding my hand when we walked, because I had to keep that hand free to help break my fall. Similarly, when I did fall, she would at first try to grab my shoulder or my arm and pull me up. I finally had to ask her not to help me get up anymore, or she might fall down also. I told her that I did better trying to get up by myself. I crawled to a tree, chair, table, walker, fence, or fire hydrant. I needed both arms and hands free to pull myself up and steady myself until I got my legs back under me. If we both went down, I asked, who would call for help?

Her primary job, I said, was to keep herself healthy and safe. We still hold hands, but do so mostly when we are sitting on the sofa in the evening watching Gray’s Anatomy or Masterpiece Theater.

But to return to your main question: no, we did not, strictly speaking, collaborate on that or any other chapter in the book. I did all of the writing, except of course for her poem on page xiv. In a more general sense, however, Anne has been my collaborator—my co-laborer—in almost everything I have done for the past sixty years. In that sense, she is part of every word in the book.

5. Isolation tends to be a slippery side-effect of Parkinson’s. Do you have any thoughts or insights to share for someone living alone with Parkinson’s, especially during COVID-19?

I have said more than once that Parkinson’s is an isolating disease. Lifelong friends are puzzled by this strange malady that at first seems not to change us at all, but then very slowly changes us in strange and unpredictable ways. Our voices change and people find that they can’t understand our slurred words and garbled sentences. They are not sure how to react to our sloppy eating habits and our drooling. They are worried about our shaking and our falling. They wonder whether our expressionless faces indicate that we are angry or depressed. They may have read somewhere that many Parkinson’s patients suffer from something called Lewy-body dementia. It all just seems too complicated, and our old friends come around less and less often. Besides, these old friends have health troubles of their own to worry about. Put it all together, add in the fact that as we age it becomes more difficult for us to make new friends, and it becomes obvious why I say that Parkinson’s is an isolating disease.

If people with Parkinson’s are unmarried, divorced, or widowed and still live by themselves rather than in a retirement home of some sort, then they need to work doubly hard to nurture friendships, join support groups, and make new friends. It is interesting that the Seattle APDA has recently started a support group designed for just such people. Called “Flying Solo,” it is led by Leanne King Devitt <leanne@seattleelderconnections.com>. The purpose of Flying Solo is to provide a once-a-month venue where single live-alone people with Parkinson’s can meet and socialize with other men and women who are living alone. When the COVID-19 pandemic hit, of course, gyms and other exercise places, as well as schools, community centers, restaurants, movie theaters, and so on, were forced to close their doors. The various Parkinson’s exercise and support groups had either to close or to shift to “virtual” meetings via Zoom technology. The Flying Solo group has temporarily shifted to virtual meetings once a month.

6. The second half of your book, on dying with Parkinson’s, naturally has a different tone from the first half, on living with Parkinson’s. To me, it’s a tone of almost fearless impatience with the lack of “death” in most conversations about Parkinson’s. Why did you decide to directly address dying with Parkinson’s?

Because most people writing books about the disease skip that part. They are happy to talk about the good parts: the medicines, the surgery, the support groups, the camaraderie, the importance of exercise, the various assistive devices like canes and walkers, how to prevent falls, the importance of hand rails and grab bars, the need to throw away throw rugs, and so on. They are happy to talk about what scientists have been discovering about the possible hereditary and environmental causes of Parkinson’s. And they are happy to talk, though much more briefly, about the fact that, with all those researchers spending all those research dollars desperately seeking a cure, the cure for Parkinson’s is surely in the offing.

The usual assumption seems to be that because that cure will arrive in time to cure all of us who have the disease, there is no need to talk about how people with Parkinson’s die: we’ll be cured before then. Besides, we have all been told, time after time, that “you won’t die of Parkinson’s, you will die with it.” The assumption seems to be that since Parkinson’s won’t kill us, we don’t need to worry about the final stages of the disease. Something else will get us first. If that is true, it is logical to conclude that if we want to prolong life, we should seek instead a cure for that “something else” and forget about Parkinson’s.
I was not happy with the way the authors of those other books conveniently shelved the need to talk about dying with Parkinson’s.

I wanted to provide a book that tried to look at a Parkinson’s death full on. Of course, I am aware that many readers will not want to think about what “dying with Parkinson’s” really means. I can understand that. Such readers may want to skip or postpone reading the second half of the book. It will be there when they are ready for it.

7. As you do in the first half of the book, you incorporate in the second a variety of outside resources to beautifully render your point. For instance, autobiography, poetry, statistics, and ethnography all work together in your discussion of “A Good Death.” Is it your writing style to engage multiple perspectives, as it is your approach to life and death with Parkinson’s?

Yes. I believe that it can be helpful to look at a subject through different lenses. If I wanted, for example, to challenge the common notion that the longer we live the happier we are and that to be immortal is to be the happiest of all, I would suggest that we have a look at Gulliver’s Travels, an early eighteenth-century novel by Jonathan Swift.

In the first two books, Gulliver had visited the land of the tiny Lilliputians and the land of the gigantic Brobdingnags. In the tenth chapter of the third book, he visits the kingdom of Luggnagg on the floating island of Laputa. He is thrilled to discover that every so often in Luggnagg a baby is born with a red circle on its forehead just above its left eyebrow. That special mark indicates that the child is a “struldbrug,” or immortal, and so will live forever.
Gulliver is immediately envious of their good fortune: “Happy nation, where every child hath at least a chance for being immortal! . . . . But happiest, beyond all comparison, are those excellent struldbrugs, who, being born exempt from that universal calamity of human nature, have their minds free and disengaged, without the weight and depression of spirits caused by the continual apprehensions of death!”

Gulliver’s genial host takes him to some wild lands outside the town. There he sees that the struldbrugs are ghastly, useless, starving, senile vagrants, old men and women scrounging for sustenance in the garbage heaps of the mortals. Gulliver soon realizes that he had assumed that struldbrugs would become immortal at the height of their powers and stay immortal at that age. Instead, the struldbrugs just keep on getting older and older, and more and more senile. Neither they nor anyone else remembers their names or how many centuries they may have lived the zombie lives of the undead. The struldbrugs themselves are envious of the mortals: “Whenever they see a funeral, they lament and repine that others have gone to a harbor of rest to which they themselves never can hope to arrive.”

Gulliver comes to see how wrong he was to envy the immortals, and is happy to know that death will save him from such a fate: “My keen appetite for perpetuity of life was much abated. I grew heartily ashamed of the pleasing visions I had formed; and thought no tyrant could invent a death into which I would not run with pleasure from such a life.” When I have occasion to visit a friend in a nursing home, I look around at the modern-day struldbrugs sitting morosely in wheelchairs in the hallways outside the doors to their little rooms. I do not envy them.

8. One of the greatest learning curves for our family has been navigating the legal, social, and other institutional hoops that can greatly impact life and death with Parkinson’s. You provide clear, helpful information and examples of death-related forms (from POLST forms to power-of-attorney forms to advance directives) and different ways to exert some control over when, where, and how we die.

When it comes to navigating these bureaucracies and legalese, my dad and I regularly benefit from the free social services of NW Parkinson’s. Do you have any specific resource recommendations?

In the past few years, I have been unable to get out much to get to libraries and bookstores, so I try to do as much research as I can on the Internet. I order promising books that I see advertised on Amazon. The resources that I found most helpful—like End of Life Washington—are the ones I mention in the book. Some people might be interested in acquiring a book called "I’m dead. Now What?: Important Information about My Belongings, Business Affairs, and Wishes". It is a personalized notebook in which you leave for your heirs information about who to notify of your death, where you do your banking, what credit cards you use, where your passport and your will can be found, who is to get your great grandma’s hickory rocker, and so on.

9. Writing a book is a stern undertaking, even for an English professor and scholar such as yourself. How did you begin this writing project? How did you end it?

I did not set out to write a book. NW Parkinson's invited me to make a couple of volunteer presentations, and I did. They invited me to write some book reviews. Reading those eighty-nine books about Parkinson’s made me realize that no one much wanted to write or talk or think about what had come to be my own central interest, how to die well with Parkinson’s.

Most writers seemed to assume that it was only a matter of time until a cure would be found, and that when it came that cure would rescue us from death. It seemed obvious to me, however, that even if a cure for Parkinson’s is discovered, we will all still die. Then I wrote a long letter to Anne and our four children about my disease and how I hoped to die with as little fuss and expense and mess as possible. I then realized that, since I was not yet dead and could still manage to type—though with maddening slowness—maybe I could fill in some of the blank spaces between what I had started to think of as chapters.
How did I end it? With a sense of weariness, with a sense of cocern that my book would offend some readers, and with a silly poem on page 165.

10. Will you share a poem with us?

What do we call “a person who has Parkinson’s disease” if we don’t want to repeat those ten syllables each time: “a person who has Parkinson’s disease”? Some call us a “PwP,” an acronym for “person with Parkinson’s,” but that seems dehumanizing—we are talking about people, not letters. Others call us“Parkies,” but that seems flippant and diminutive. Little dogs are doggies; little cats are kitties; little ducks are duckies. People with Parkinson’s are not little and we’re not soft and fluffy. If we hear you calling us “Parkies,” one of us will growl and chew on your leg, one of us will hiss and sharpen her claws on your butt, and another will quack and take a peck at your eyes. How about “Parkin”?


Old soldiers never die,
they just fade away.
Old teachers never die,
they just grade away.
Old gluttons never die,
they just taste away.
Old Parkins never die,
we just waste away.

To waste away, however, seems so, well, wasteful. It can be a long, lonely, slow, helpless, hopeless, miserable, dehumanizing, demanding, expensive, diaperish, struldbrugish way to go. Are you sure that is what you want? Wasting away can use up the lives and financial resources of the people you love most. One of the purposes of my book is to suggest alternatives to that kind of terminal wastefulness.
But let me end with a silly limerick:

I know an old Parkin named Pete
Who stumbles around on his feet.
      If you call him a Parkie
      He’ll start to get snarky
And then you'll not think he's so sweet!

Recent Posts

Drop Everything, It’s Parkinson’s
In Your Trembling Hands
Michael J. Fox’s No Time Like the Future: A Book-Review Essay by Peter G. Beidler
Hope You Like The New Me


2019 (1)
Ability (1)
access (1)
Active (2)
Activist (1)
Advice (3)
Advocacy (3)
Affordable (2)
Alaska (5)
Approach (1)
art and culture (1)
astrophotography (1)
Athletic Training (1)
attitude (26)
Attitude (15)
Auction (1)
Author (1)
Autonomy (1)
Awareness (1)
Benefits of exercise (1)
Blog (8)
Board member (1)
book (1)
Book (5)
Book review (18)
Book Reviews (1)
Books (1)
Boxing (1)
care (1)
care partner (2)
Caregiving (1)
Caregiving & Relationships (43)
carepartner (1)
Carepartner (1)
Cartoon (1)
Cats (1)
Celebrate (1)
Ceremony (1)
Challenges (1)
Choice (1)
Circadian rhythm (1)
Cognition (1)
Cognitive Decline (1)
Communication (1)
community (1)
Community (14)
Compassion (1)
Connect (2)
Cookbook (1)
Cooking (2)
Creativity (1)
curiosity (1)
Curiosity (1)
Cycling (1)
dance (1)
dance for Parkinson's (1)
Dance for PD (1)
Daughter (2)
Daughters (1)
DBS (1)
Dealing with shame (1)
diagnosis (1)
Diagnosis (1)
Diagnosis & Progression (35)
diet (1)
Diet (1)
Disability (1)
Dopamine (1)
Dying with Parkinson's (1)
Easy meals (1)
Education (3)
Email (1)
empower (1)
end of life (1)
End of Year (1)
Engage (2)
engagement (1)
English (1)
Enjoy (1)
environment (1)
Environmental health (1)
Executive Director (2)
exercise (1)
Exercise (42)
Exercise & Movement (8)
Experiencing Parkinson's (1)
Facts (2)
fall (1)
Fall (1)
Family (4)
Food (2)
Friends & Family (1)
Friendship (1)
Fun (1)
Fundraising (3)
Gala (1)
Golf (1)
Golf Lessons (1)
Golf with Parkinson's (1)
Grandparent (1)
Grandson (1)
Grant writing (1)
Gratitude (1)
Greet (1)
Halloween (1)
Healing (1)
Health (2)
Health & Fitness (1)
Health & Safety (1)
Health & Wellness (1)
Health Effects (1)
healthcare (1)
Hero (1)
Hike (1)
Hike for Parkinson's (1)
Holiday (2)
Hope (38)
HOPE Conference (1)
Hot (1)
Humor (2)
Iced (1)
Idaho (1)
Illustrator (1)
Inland Empire (2)
Instagram (1)
Interview (2)
Joy (2)
Julio Angulo (14)
Kids (2)
King County (1)
Kirkland (1)
Legacy (1)
legislation (1)
Life impacted by Parkinson's (1)
Life with Parkinson's (1)
Lifestyle (26)
Light therapy (1)
Light treatment (1)
Literature (1)
Living with Parkinson's (124)
Local (1)
long-term (1)
Medicare (1)
Medication (1)
Meditation (1)
Melissa Tribelhorn (1)
Mindfulness (1)
Montana (1)
motor symptoms (38)
Motor symptoms (2)
Move Connect Engage (2)
Movement (2)
Movement Disorders Specialist (1)
Music (1)
National Institute of Health (1)
Navigating Healthcare (1)
Neuroscience (1)
Neurotoxicology (1)
Never say never (1)
Newsletter (1)
nonmotor symptoms (41)
Nonprofit (4)
Nonprofit Mission (2)
northwest (1)
Northwest (6)
northwest parkinson's (1)
Northwest Parkinson's (1)
Northwest Parkinson's Foundation (2)
NW Parkinson's (4)
Ode (1)
Organization (1)
Outlook (1)
pacific northwest (1)
Pacific Northwest (2)
Pain (1)
Parents (2)
parkinsons (2)
parkinson's (4)
Parkinson's (23)
Parkinson's and research (1)
parkinsons awareness (1)
parkinson's awareness (2)
Parkinson's awareness (2)
Parkinson's Awareness (6)
Parkinson's Community (9)
Parkinson's Diagnosis (2)
parkinson's disease (12)
Parkinson's Disease (2)
Parkinson's Disease Symptoms (10)
Parkinson's Drugs (1)
parkinson's family (2)
Parkinson's in the Media (11)
Parkinson's Nonprofit (2)
Parkinson's Project (1)
Parkinsons Research (3)
Parkinson's Research (2)
Parkinson's Story (1)
Parkinson's Writers (1)
PasstoPass (1)
Pause (1)
perseverance (1)
Perspective (2)
Peter Dunlap-Shohl (35)
Phenomenon (1)
philosophy (1)
photography (1)
Planning (1)
pnw (1)
Poem (1)
Poetry (1)
Pour (1)
Prescription (1)
Prevention (1)
Programs (1)
Progression (1)
quality care (1)
Quality of life (3)
Reaction time (1)
REI (1)
Research (33)
Resources (2)
retirement (1)
Reviews (1)
run (1)
running (1)
Safety (2)
Sailor West (3)
Self-Care (1)
Service (1)
Services (1)
Sharing your diagnosis (1)
Shark (1)
Sleep (1)
Social Services Manager (2)
Soul food (1)
Speech (1)
Sports (1)
Spring (1)
Stories (1)
Story (1)
strength (1)
Submission (1)
Summer (1)
Support (11)
support groups (5)
Support Groups (1)
tai chi (1)
take control (1)
tango (1)
Tea (1)
Teacher (1)
Team (1)
technology (1)
Teens (1)
Telemedicine (1)
Terry Tuesdasys (1)
Terry Tuesday (4)
Thank You! (1)
Thanksgiving (1)
The Weekly (1)
Therapy (1)
Tips (1)
Together (1)
Toxicology (1)
trails (1)
Treatment options (1)
Treatment Options (55)
Tuesday Terry (2)
Tuesday with Terry (1)
Tuesdays with Terry (4)
University of Washington (1)
Veterans (1)
Video (1)
Volunteer (1)
vulnerable (1)
Walk for Parkinson's (2)
Washington (2)
wellness (1)
Wildfire Smoke (1)
Winter (3)
Women with Parkinson's (1)
working with parkinsons (1)
working with Parkinson's (1)
World Parkinson Congress (1)
Write (3)
Writer (2)
Writing (4)
Yoga (1)
Young Adults (1)
young onset (1)
young onset parkinson's (20)


2022 2021 2020 2019
"My Self-Esteem and Sense of Purpose were Totally Reignited"
"The Phone Number that Changed My Life"
"Every Member of the Parkinson's Community"
"Connecting People with Parkinson's"
It Could Be Worse
Drug Price Reforms Can’t Come at Cost to Access
The Man in the Bed 
A Sea of Troubles
Living with the Losses of Chronic Disease
Things To Avoid Saying to a Person with Parkinson’s
"Mutual Honesty": A Conversation with Sailor West
Al Greenwood's Journey with Parkinson's
You Say You Want a Renovation
Wile E. Coyote, Spinoza, PD and Me 
Get Ready for NW Parkinson's Day Spokane!
Living with Parkinson's in the NW: How to Plan for Wildfire Smoke
Dog Person
One Stellar View
Credible Hope
Find Melissa & PD Link at the WPC!
Parkinson's Unawareness: It's a Big Job
Parkinson's & Poetry: a Thank You
Stronger Together: Parents with Parkinson's
Surprising Ways Yoga and Meditation Can Heal
Just Call Me Shake-Speare
Changing a Battery Part II
Erin Go Braugh!
Sherri Hadley, A Triumph of Joy Over Fear
Gangsta Grandpa
Stronger Together: Daughters of People With Parkinson’s
Wading without a Muse
Staff Spotlight on Jordan Whitley
What's for Dinner?
Changing a Battery
Snowmageddon Snydrome
One Grunt, or Two? A Parkinsonian Dialogue
One Look at Community: the Newest Women's Support Group
The Digital Caregiver's Nervous System
Board Member Spotlight on Steve Gilbert
A Mutual Admiration Society
Hang on to Your Shower Cap
Happy New Year - Thanks to You!
Joy & Other Winter Odes
Let There Be Light!
Smart Speakers: the New Electronic Care Assistant
Punch-Drunk Parkinson's
Pass to Pass to Pass...
Terry & Marian's Thanksgiving for Two
"Pilot to Co-Pilot"
A Gem in the Healthcare Haystack
Never Say Never
The Parkinson's Holiday
Melissa’s Vote Note
Baguette and Red
Pete Beidler: The Man Behind the Books
Reimagining Our Approach to Parkinson’s
Celebrating Fall
Board Member Spotlight on Pinky Reeve
Whispers on the Run
More than Our Words: Speech Pathology & Parkinson's
Hardwired for Humor
Golf & Parkinson's
Tea with Terry
Welcome to The Weekly!
Never Stop Learning: an Astrophotographer's Approach
Board Member Spotlight on Doreen Nicholas
Second Opinions
Parkinson's Pete Reviews "Perseverance" by Tim Hague
Pathway to Picnic Perfection
Board Member Spotlight on Gloria Gottesman
Care Cat
"We'll Never Leave Anybody Behind"
Parkinson's Pete Reviews "The Highest Tide"
Uniting the Parkinson's Community
Horse Sense & Parkinson's
The Ballard Wave
Parkinson's Pete Reviews "I Give My Eyes" by Brian Peterson
Board Member Spotlight on Elizabeth Keller
Who, What, When?
Controlled Flight into Terrain
No Good Deed Goes Unpunished
Guitar Therapy
A New Parkinson's Perspective
Pete Beidler Reviews "The Heartbeat of Creativity"
Board Member Spotlight on David Newsom
Pete Beidler Reviews "A Parkinson's Life"
We're Listening: NWPF 2017 Community Survey
Lessons From Having Parkinson's
Fundraising with Family: Meet the Hankens
Feel it in the Gut: Daughters of People with Parkinson’s
Pairing Tango & Parkinson's
New Diagnoses, New Posses
Meet your new Executive Director!
Outside the Ring: Rock Steady Boxing
Poetry & Parkinson's
Holding on to Hope
Confessions of a Pill Head
Tackling PD Together
Pulling the Plug
Five Important Questions: How Do I Make the Best Decision?
Love Your Body Week
A Review on Parkinson Pete’s Bookshelves
Why me?
Parkinson Voice Project
2017 2016
Lies That Parkinson's Disease Told Me
Managing the Holiday Blues 2016
Who Was That Masked Man?
The Rain Is Shining — A Thanksgiving Message
Book Review - H.O.P.E.: Four Keys to a Better Quality of Life for Parkinson's
David Leventhal: Dancer, Teacher, Community Leader, Humanitarian, Movement Specialist
Meet Emily!
Rhonda Foulds, Outrunning Parkinson's Disease
Book Review: The Perapatetic Pursuit of Parkinson Disease
Staff Stories - Melanie
Snake Oil, the Cure for Parkinson's.
Book Review: Nan Little
Life's a Lot Better with NWPF
Tipping Points
Book Review: Natural Therapies for Parkinson's Disease
Dare to Attend a Support Group
Ten for David
Time After Time: Kim Farmer's Story
The Glass is Half-Full
Book Review: Reverse Parkinson's Disease
Parkinson's and Free Will
A positive attitude is everything
Book Review - Lucky Man: A Memoir
Alexithymia, the Parkinson’s Get Out of Jail Free Card
We Make Them Together: Major Decisions in Caregiving
Boxing is cool
Safety with Style: House Renovations you can hold on to
Book review: On My Own
Shaken to the Core
Isolation and Parkinson's Disease, The hiding and the hidden
Camp Brian Interview
Safety with Style: House design ideas you can hold on to
Book review: Shake Well Before Use
Notes on Acceptance
"Advice" to a person with Advancing Parkinson's Disease
Needed: New Parkinson’s Vocabulary
Caregiving: Ken's Story
A Well-Tested Testimonial, or Spin for Parkinson's
Safety with Style: House design ideas you can hold on to
Caregiving: Susan's Story
Rock Steady Boxing: Emily
Book Review: My Degeneration, A Journey Through Parkinson's
The Marble Halls of Power
Safety with Style: House design ideas you can hold on to
Managing the Holiday Blues
Book Review: A Complete Guide for Patients and Families
The joke is on Parkinson's
I don't always like groups, but when I do...
JBC + DBS: A Mostly-Love Story (Continued)
Rock Steady Boxing: Fred Hyde
Present Moment: A Continued Conversation
Book Review: Navigating Life with Parkinson's Disease
JBC + DBS: A Mostly-Love Story
Present Moment
On the scent of Parkinson’s disease
Harold Allen (Hal) Newsom
The 2016 World Parkinson’s Congress in Portland, Oregon is Fast Approaching: Make Plans to Attend
Flowers on Dr. Starr's Tie
Leading the life of malicious whimsy
Listen: Unlocking Parkinson's Disease
Book Review: If I Can Climb Kilimanjaro, Why Can't I Brush My Teeth?
The Evolution of HOPE
QUIZ: How well do you know your Parkinson’s Disease?
Living with Hope
Notes on Hope
Tug, tug, tug
Denial on Trial
Flowers in Our Hair
Resilience: Bouncing Back from Adversity
Summer Travel
Tina Sawyer Steps Up Fundraising in Seaside
The uncooperative patient
To be in June
Pressure Sores
Caring for a Spouse Living with PD
Life Lessons
Doc Parkinson - A Eulogy
Boom Go Parkinson’s Costs
From the Depths of the Cupboards: Pumpkin Bars
Doctor's Visits
Get Moving!
Choosing a shared burden
Our Brain's "Negativity Bias" Part 2
Outside of Language
Managing Constipation in Parkinson’s Disease
Finding Time for Caregiver Care
The Helplessness Antidote
Examples of living your best
10 exercise tips for people with Parkinson's
Bit on Basketball
Suggestions for the Shaken
Parkinson's Action Network (PAN) Report
Our Brain’s “Negativity Bias”
Living for a Cure
Three Huge Changes for People with Parkinson's
Caregiving, the Next Level
Parkinson's Pundit
Making Spousal Relationships Work
Parkinson’s and Luck
Strength. Courage.
Resolve to be a Better Caregiver!
Update from the Parkinson's Action Network
Strategies to Achieve our New Year’s Resolutions and Goals
Movement is Medicine
2014 2013 2012
Most popular posts of 2012
What are you grateful for this holiday season?
How can I tell whether medications are wearing off or Parkinson’s disease is progressing?
Can a person with Parkinson’s give blood?
When is the right time to start Levodopa?
Can acupuncture help PD symptoms?
Support the Caregiver in your Life
Power of the mind to move treatment further
Top 10 Foods for Parkinson’s (and counting!)
How can I prevent dizziness?
What can you tell me about laser light therapy and Parkinson’s
What is music therapy?
Should I take Coenzyme Q10 for my Parkinson’s?
How do I treat my cough at night?
Parkinson’s fitness programs need to be tailored to the individual to get results
Carrying the Olympic Torch for Parkinson’s today
Coffee reduces risk of Parkinson’s. What about other foods?
Facts about depression
How can I find a good doctor who is knowledgeable about PD and is caring as well? My doctor does not always listen.
Help for constipation
Sex, Intimacy and Parkinson’s
Does DBS affect speech?
Walking and balance can significantly impact quality of life- but is treatable.
Depression is common with Parkinson’s
Ode to Parkinson’s- Poem from Member
Music Enhances Brain Activity
How does posture change with Parkinson’s?
What is important to you?
Are hallucinations caused by Parkinson’s?
Hot Off the Press – Neupro approved by FDA
How do I find a Parkinson’s physical therapist to keep me exercising?
Does Azilect slow disease progression?
Manage nausea from medicines
Is delaying medication harmful?
Advice for newly diagnosed
Is Parkinson’s Hereditary?
Medication Timing
Is gambling a side effect of medicine?
Medication Assistance
Does stress cause Parkinson’s?
When to see a physical therapist
FDA approves DATScan
Coconut Oil
Protein’s effect on medicine
Restless Leg Syndrome