NWPF

PD Community Blog

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Pay It Forward

Monday March 20, 2017

If not us, who? If not now, when? Those two questions have become my personal mantra. As a person with a chronic (it isn’t going away) and progressive (it is going to get worse) disease, I believe I have a personal responsibility to participate in medical research—even though it is doubtful that I will ever see the benefit.

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Book Review: Natural Therapies for Parkinson's Disease

Monday August 08, 2016

In Natural Therapies for Parkinson’s Disease, Dr. Mischley calls for the integration of the conventional approach to Parkinson’s — involving carbidopa-levadopa, agonists, and other pharmaceuticals — with the naturopathic approach — involving nutrition and vitamin supplements. She is convinced that if neurologists and naturopaths work together, then patients need not assume that Parkinson’s is always progressive or that it can never be slowed, halted, or even reversed.

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Ten for David

Monday July 25, 2016

On Saturday, June 4, 2016, Peter G. Beidler gave the opening remarks at a seminar on treatment options for Parkinson’s disease at a PD University seminar at Skyline in central Seattle. We asked him if we could publish his remarks in the Parkinson’s Post.

Content Warning: Death with Dignity

[This] is a realistic scenario that many who have Parkinson's or who love someone with Parkinson's will want to read. Some may find it depressing to learn in so much honest detail about what this disease can do to people, and to the families of people, with the disease.

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The Marble Halls of Power

Monday January 11, 2016

Last spring, I had the opportunity to attend a two day workshop in Washington, D.C. with the Parkinson’s Action Network—an advocacy group representing the entire Parkinson’s community. The workshop was focused on preparing us for the third day—a visit to the Hill.

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On the scent of Parkinson’s disease

Friday October 30, 2015

That shaking that you felt over the last few weeks was the Parkinson’s Disease world getting rocked by the news that a Scottish woman can detect PD by a subtle “musky” odor given off by those afflicted with the disorder. This is good, if typically weird, Parkinson’s news.

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Listen: Unlocking Parkinson's Disease

Tuesday September 29, 2015

Science Friday - In 1985, science journalist Jon Palfreman investigated a group of drug addicts who were struck with Parkinson’s-like symptoms after taking tainted heroin. Thirty years later, Palfreman was diagnosed with Parkinson’s disease. In his book Brain Storms, he describes having Parkinson’s as “going on vacation in another country and having to drive on the ‘wrong’ side of the road.” Palfreman describes his own journey with the disease and discusses new treatments for Parkinson’s patients.

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Boom Go Parkinson’s Costs

Friday June 12, 2015

The drastic increase of the national economic burden of PD has proven to be the result of the inflation of the elderly population (the Baby Boomers generation). We could reduce costs by hundreds of millions through by delaying disease progression by 30%.

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Parkinson's Action Network (PAN) Report

Tuesday March 31, 2015

Parkinson's Action Network (PAN) is the political presence for all the major organizations representing Parkinson's in the US. With offices in the other Washington, its staff cultivates relationships that are important to the PD community, keeps tabs on legislation and lobbies on our behalf.

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Three Huge Changes for People with Parkinson's

Friday March 13, 2015

There are three components to recent changes in the experience and treatment of Parkinson's, all of which have the promise to contribute greatly to the care and everyday quality of life experienced by those of us with PD.

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Update from the Parkinson's Action Network

Friday January 16, 2015

On January 6, members of the 114th Congress were officially sworn in, and the House and Senate opened their legislative sessions for the year. In various media reports, articles, and blogs, you may have seen a lot of speculation about the new Republican majority and even concern about the potential for increased partisan gridlock.

Some of that may be true, and it's kind of the 'palace intrigue' of American politics these days, but I see something a little different.

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