PD Community Blog

Filtered by: Peter Dunlap-Schohl

Leading the life of malicious whimsy

Friday October 09, 2015

A friend who underwent successful ​Deep Brain Stimulation surgery told me that now, with major motor problems sidelined, she was free to savor “the finer miseries of Parkinson’s.” Among these finer miseries​, I would include the malicious whimsy th​is​ disease inflicts on sufferers.

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QUIZ: How well do you know your Parkinson’s Disease?

Friday September 11, 2015

To complete the quiz, you’ll need a pen, a pencil, or a stick to note your answers; an encyclopedic knowledge of Parkinson’s disease, or access to a reliable search engine; dogged perseverance; a sense of humor. Choose as many of the answers as seem true to you.

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Denial on Trial

Thursday August 13, 2015

Like I said, (and yes, I “protest too much,”) it’s not about me. It’s about you. I just hope you learn from my experience, acknowledge the facts, appreciate what you have and then live according to whatever seems to you best in light of reality. To live as though these things matter.

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Three Huge Changes for People with Parkinson's

Friday March 13, 2015

There are three components to recent changes in the experience and treatment of Parkinson's, all of which have the promise to contribute greatly to the care and everyday quality of life experienced by those of us with PD.

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Parkinson's Pundit

Friday February 20, 2015

Parkinson’s is complicated, and complicating. Among the things you now must weigh when making plans, and coping with your new reality is the question “should I tell people I have PD?”

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Is there anything good about Parkinson's Disease?

Friday October 24, 2014

I was informed recently I have a “bad attitude” toward my disease. This got me thinking. Is there anything good about Parkinson’s Disease? Does its extensive resume of mayhem boast an item of community service I overlooked? Some instance of kindness or mercy I missed? Some redeeming quality everyone but me could see? Had I, Heaven forbid, done PD wrong?

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PD & Creativity

Friday September 26, 2014

What does Parkinson's tell us about creativity? About artists? Is creativity truly enhanced by PD therapies or is it there all along, dormant, only to be unmasked by them? Peter Dunlap-Shohl muses on PD and creativity.

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How Could I Be So Wrong?

Tuesday August 26, 2014

It’s hard to avoid a bit of hysteria on being diagnosed with Parkinson’s Disease. To be scientifically rational and ruthlessly objective is hard even under the best circumstances. Nobody would confuse a PD diagnosis with the best of circumstances. One could even argue a little hysteria is an under-reaction to news of being stalked by a disorder that relentlessly hollows out those it afflicts until death.

The grimmest part? You are helpless to stop it. How can this be? In our present days of miracle and wonder, we carry little magic tablets that can conjure images of loved ones and allow interaction from a continent away. We travel thousands of miles in a few hours, watching the clouds from above. We even return from death regularly in emergency rooms across the World, relieved, grateful, but not especially surprised. The fact that, in the midst of this everyday sorcery, we somehow forgot to cure Parkinson’s Disease seems almost negligent.

Talk about pent up demand! After all these years, we are eager to embrace whatever holds the promise of curing, or at least slowing the inexorable progression of this disease. So recent news that a phase three trial of CoQ10 came up empty was disappointing.

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Re-Prioritizing Hopes

Monday April 21, 2014

With over ten years gone since my diagnosis with Parkinson’s Disease, I’m trying to tamp down my greatest hope. That selfish and obvious hope? Of course, it’s for a PD cure.

What’s the problem with hoping for a cure? In the abstract, there is nothing wrong with this. In fact it’s impossible not to hope for such a thing if you have this collection of afflictions we call Parkinson’s Disease.

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