PD Community Blog

Filtered by: Peter Dunlap-Schohl

Tipping Points

Tuesday August 16, 2016

14 years into diagnosis, the falls still come as a surprise. One minute I’m upright and sailing along, the next the asphalt is rushing up at me. The alarms sound, the adrenaline spikes, the needles jump into the red, we’re going down! Shields up! SHIELDS UP!!!... But there are no shields. 180 pounds of vulnerable flesh and bone crashes to the earth. Damage control, report! Minor bruises, a worried wife, battered dignity, and foreboding about the future.

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Needed: New Parkinson’s Vocabulary

Friday February 26, 2016

One of the less noticed challenges of Parkinson’s Disease is mastering the arcane vocabulary that describes the particulars of the disorder. If we want to speak clearly with our doctors and others about what ails us, we have to use strange words like “dyskinesia,” “festination,” “dystonia,” and “bradyphrenia.” Words that are fun to say on their own, but even more fun to rattle off as part of a sentence. “In spite of severe dystonia, she managed to festinate across the room.”

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Leading the life of malicious whimsy

Friday October 09, 2015

A friend who underwent successful ​Deep Brain Stimulation surgery told me that now, with major motor problems sidelined, she was free to savor “the finer miseries of Parkinson’s.” Among these finer miseries​, I would include the malicious whimsy th​is​ disease inflicts on sufferers.

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QUIZ: How well do you know your Parkinson’s Disease?

Friday September 11, 2015

To complete the quiz, you’ll need a pen, a pencil, or a stick to note your answers; an encyclopedic knowledge of Parkinson’s disease, or access to a reliable search engine; dogged perseverance; a sense of humor. Choose as many of the answers as seem true to you.

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Denial on Trial

Thursday August 13, 2015

Like I said, (and yes, I “protest too much,”) it’s not about me. It’s about you. I just hope you learn from my experience, acknowledge the facts, appreciate what you have and then live according to whatever seems to you best in light of reality. To live as though these things matter.

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Three Huge Changes for People with Parkinson's

Friday March 13, 2015

There are three components to recent changes in the experience and treatment of Parkinson's, all of which have the promise to contribute greatly to the care and everyday quality of life experienced by those of us with PD.

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Parkinson's Pundit

Friday February 20, 2015

Parkinson’s is complicated, and complicating. Among the things you now must weigh when making plans, and coping with your new reality is the question “should I tell people I have PD?”

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Is there anything good about Parkinson's Disease?

Friday October 24, 2014

I was informed recently I have a “bad attitude” toward my disease. This got me thinking. Is there anything good about Parkinson’s Disease? Does its extensive resume of mayhem boast an item of community service I overlooked? Some instance of kindness or mercy I missed? Some redeeming quality everyone but me could see? Had I, Heaven forbid, done PD wrong?

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PD & Creativity

Friday September 26, 2014

What does Parkinson's tell us about creativity? About artists? Is creativity truly enhanced by PD therapies or is it there all along, dormant, only to be unmasked by them? Peter Dunlap-Shohl muses on PD and creativity.

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How Could I Be So Wrong?

Tuesday August 26, 2014

It’s hard to avoid a bit of hysteria on being diagnosed with Parkinson’s Disease. To be scientifically rational and ruthlessly objective is hard even under the best circumstances. Nobody would confuse a PD diagnosis with the best of circumstances. One could even argue a little hysteria is an under-reaction to news of being stalked by a disorder that relentlessly hollows out those it afflicts until death.

The grimmest part? You are helpless to stop it. How can this be? In our present days of miracle and wonder, we carry little magic tablets that can conjure images of loved ones and allow interaction from a continent away. We travel thousands of miles in a few hours, watching the clouds from above. We even return from death regularly in emergency rooms across the World, relieved, grateful, but not especially surprised. The fact that, in the midst of this everyday sorcery, we somehow forgot to cure Parkinson’s Disease seems almost negligent.

Talk about pent up demand! After all these years, we are eager to embrace whatever holds the promise of curing, or at least slowing the inexorable progression of this disease. So recent news that a phase three trial of CoQ10 came up empty was disappointing.

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