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Golf & Parkinson's
Monday August 13, 2018
John Kelley is a golf instructor based out of Arlington, Washington. He and athletic trainer Laney Ullom form the welcoming, innovative John Kelley Golf.
John Kelley
Laney Ullom
John and Laney met my dad, Brian Camp, at the annual golf tournament put on by Camp Brian. The cause—raise awareness and funds for families affected by Parkinson’s—caught their attention and, soon enough, their hearts. It helps that John, Laney, and my dad share a love for storytelling as well as golf.
I spoke with all three of them at John Kelley Golf, which is an accessible and incredibly equipped outbuilding. We toured their space and history while my dad practiced his swing in the background.
BJC: Bette Jane Camp
JK: John Kelley
LU: Laney Ullom
BJC: How did John Kelley Golf begin?
JK: We are a directive from my wife [laughs]. She and I moved to the Pacific Northwest to be grandparents. My wife has been there for every breath that our grandkids have ever taken.
We had lived in Vegas for 24 years. I was a golf professional there and a member of the PGA. When we moved, I decided to play more golf [for myself]. But every time I came home from the course, I would complain to my wife: “The weather’s just so wet!”
And finally she said, “Look. You’re either gonna build the building and shut up. Or, you’re not gonna build the building, and shut up.”
And I said, “Okay, fine” [laughs].
When I went back to play golf, I learned about the Titleist Performance Institute, a training piece of the Titleist organization. I needed to get in better condition to compete. So I found a consultant, Ben Boyle IRG Sports, where I met and began working with Laney.
How would you describe your business, as it stands and where it’s going?
JK: We are a golf-instructional, strength and agility training facility; we focus on player development.
About two years ago, through Ben Boyle IRG, I participated in a fundraiser for Parkinson’s: the Camp Brian Golf Tournament. I met your dad, and I [made a major] connection.
My grandfather, my mom’s dad, had Parkinson’s. He was a tremendous man. He was an entrepreneur in the ‘30s and ‘40s; he traveled the world, made bamboo furniture, hiked every inch of the Hawaiian islands. And then, he was diagnosed with Parkinson’s.
I was just a young kid, but I watched it really [impact] his life.
Through conversations with Brian, I recognized a great, possible outlet [for people with Parkinson’s]. I asked him if he’d like to work on his golf game, his swing, have some more fun with it. Of course he said, “Right on!” [laughs].
And we learned that we can help people with Parkinson’s stay or get more active through their golf game.
I’m a member of the Pacific Northwest PGA; they offer grants every year with Yamaha golf carts. Lainey, Brian, and I talked about it and decided to apply for one.
I remember getting the email [of an award] from the PGA. I came in to work and told Laney: “We’ve got some good news and bad news.”
Laney said, “What is it?”
I told her, “We got the grant.”
“What’s the bad news!”
“Now we’ve gotta do it,” [laughs].
That’s led us to the educational part of working with people with Parkinson’s. We got in touch with Lacey [Ramon], who leads Rock Steady Boxing in Snohomish and Everett [WA].
LU: Lacey told us that there is so much to learn about Parkinson’s. Understanding the physiology, how to measure where people are individually—and she told us about PWR! Moves.
This organization in Arizona hosts workshops and seminars on Parkinson’s for occupational and physical therapists, personal trainers and group fitness instructors. They also explain how to build a fitness plan, a clinic. Rock Steady Boxing has incorporated daily exercises into something fun, and we’re doing that with golf.
We hope to improve the quality of life and daily activities for people with Parkinson’s and, if they haven’t been able to, help them play golf again! [Through PWR! Moves, John Kelley Golf] can provide an evidence-based, innovative, and fun way for people with Parkinson’s to play and practice.
My passion is in helping people, and learning with them. And, I love golf [laughs]. The people I meet through the sport are so great. Your dad is the first person with Parkinson’s that I’ve met; I think he sunk a putt for us on the tenth hole [at the Camp Brian Golf Tournament].
What’s your approach to helping the golf game of people with Parkinson’s?
JK: We want to meet a need for and create a community, to offer a resource that just isn’t there.
It will be inexpensive, and individualized; we want to give back. I grew up with: “I’ll give you a dime for your nickel.”
I was taught to give away what I can’t keep, so that I can receive what I can’t lose. And I’ve seen that throughout this process [of creating golf lessons] for people with Parkinson’s.
-
To learn more about John Kelley Golf, check out their website or contact John:
425.610.6412
JKCustomGolf@Aol.com
Bette Jane Camp
NWPF Blogger
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The Most Interesting Men in the World
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Parkinson's Takes Guts
Being Defined by Parkinson's Disease
Don't Mistake Your Claws For Virtue
A Day in the Life of a Parkinson Warrior
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Needed: New Parkinson’s Vocabulary
Caregiving: Ken's Story
A Well-Tested Testimonial, or Spin for Parkinson's
Safety with Style: House design ideas you can hold on to
Caregiving: Susan's Story
Rock Steady Boxing: Emily
Book Review: My Degeneration, A Journey Through Parkinson's
The Marble Halls of Power
Safety with Style: House design ideas you can hold on to
2015
Managing the Holiday Blues 2016
Who Was That Masked Man?
The Rain Is Shining — A Thanksgiving Message
Book Review - H.O.P.E.: Four Keys to a Better Quality of Life for Parkinson's
David Leventhal: Dancer, Teacher, Community Leader, Humanitarian, Movement Specialist
Meet Emily!
Rhonda Foulds, Outrunning Parkinson's Disease
Book Review: The Perapatetic Pursuit of Parkinson Disease
Staff Stories - Melanie
Snake Oil, the Cure for Parkinson's.
Book Review: Nan Little
Life's a Lot Better with NWPF
Tipping Points
Book Review: Natural Therapies for Parkinson's Disease
Dare to Attend a Support Group
Ten for David
Time After Time: Kim Farmer's Story
The Glass is Half-Full
Book Review: Reverse Parkinson's Disease
Contentment
Parkinson's and Free Will
A positive attitude is everything
Book Review - Lucky Man: A Memoir
Alexithymia, the Parkinson’s Get Out of Jail Free Card
We Make Them Together: Major Decisions in Caregiving
Boxing is cool
Safety with Style: House Renovations you can hold on to
Book review: On My Own
Shaken to the Core
Isolation and Parkinson's Disease, The hiding and the hidden
Camp Brian Interview
Safety with Style: House design ideas you can hold on to
Book review: Shake Well Before Use
Notes on Acceptance
"Advice" to a person with Advancing Parkinson's Disease
Needed: New Parkinson’s Vocabulary
Caregiving: Ken's Story
A Well-Tested Testimonial, or Spin for Parkinson's
Safety with Style: House design ideas you can hold on to
Caregiving: Susan's Story
Rock Steady Boxing: Emily
Book Review: My Degeneration, A Journey Through Parkinson's
The Marble Halls of Power
Safety with Style: House design ideas you can hold on to
ROCKIN’ AROUND THE GROCERY CART
Managing the Holiday Blues
Book Review: A Complete Guide for Patients and Families
The joke is on Parkinson's
I don't always like groups, but when I do...
JBC + DBS: A Mostly-Love Story (Continued)
Rock Steady Boxing: Fred Hyde
Present Moment: A Continued Conversation
Book Review: Navigating Life with Parkinson's Disease
JBC + DBS: A Mostly-Love Story
Present Moment
On the scent of Parkinson’s disease
Harold Allen (Hal) Newsom
The 2016 World Parkinson’s Congress in Portland, Oregon is Fast Approaching: Make Plans to Attend
Flowers on Dr. Starr's Tie
Leading the life of malicious whimsy
Listen: Unlocking Parkinson's Disease
Book Review: If I Can Climb Kilimanjaro, Why Can't I Brush My Teeth?
The Evolution of HOPE
QUIZ: How well do you know your Parkinson’s Disease?
Living with Hope
Notes on Hope
Tug, tug, tug
Denial on Trial
Flowers in Our Hair
Resilience: Bouncing Back from Adversity
Summer Travel
Tina Sawyer Steps Up Fundraising in Seaside
The uncooperative patient
To be in June
Pressure Sores
Caring for a Spouse Living with PD
Life Lessons
Doc Parkinson - A Eulogy
Boom Go Parkinson’s Costs
From the Depths of the Cupboards: Pumpkin Bars
Doctor's Visits
Get Moving!
Choosing a shared burden
Our Brain's "Negativity Bias" Part 2
Outside of Language
Managing Constipation in Parkinson’s Disease
Replacements
Finding Time for Caregiver Care
The Helplessness Antidote
Examples of living your best
10 exercise tips for people with Parkinson's
Bit on Basketball
Suggestions for the Shaken
Parkinson's Action Network (PAN) Report
Our Brain’s “Negativity Bias”
Living for a Cure
Three Huge Changes for People with Parkinson's
Caregiving, the Next Level
Parkinson's Pundit
Perseverance
Making Spousal Relationships Work
Parkinson’s and Luck
Strength. Courage.
Resolve to be a Better Caregiver!
Update from the Parkinson's Action Network
Strategies to Achieve our New Year’s Resolutions and Goals
Movement is Medicine
2014
Managing the Holiday Blues
Book Review: A Complete Guide for Patients and Families
The joke is on Parkinson's
I don't always like groups, but when I do...
JBC + DBS: A Mostly-Love Story (Continued)
Rock Steady Boxing: Fred Hyde
Present Moment: A Continued Conversation
Book Review: Navigating Life with Parkinson's Disease
JBC + DBS: A Mostly-Love Story
Present Moment
On the scent of Parkinson’s disease
Harold Allen (Hal) Newsom
The 2016 World Parkinson’s Congress in Portland, Oregon is Fast Approaching: Make Plans to Attend
Flowers on Dr. Starr's Tie
Leading the life of malicious whimsy
Listen: Unlocking Parkinson's Disease
Book Review: If I Can Climb Kilimanjaro, Why Can't I Brush My Teeth?
The Evolution of HOPE
QUIZ: How well do you know your Parkinson’s Disease?
Living with Hope
Notes on Hope
Tug, tug, tug
Denial on Trial
Flowers in Our Hair
Resilience: Bouncing Back from Adversity
Summer Travel
Tina Sawyer Steps Up Fundraising in Seaside
The uncooperative patient
To be in June
Pressure Sores
Caring for a Spouse Living with PD
Life Lessons
Doc Parkinson - A Eulogy
Boom Go Parkinson’s Costs
From the Depths of the Cupboards: Pumpkin Bars
Doctor's Visits
Get Moving!
Choosing a shared burden
Our Brain's "Negativity Bias" Part 2
Outside of Language
Managing Constipation in Parkinson’s Disease
Replacements
Finding Time for Caregiver Care
The Helplessness Antidote
Examples of living your best
10 exercise tips for people with Parkinson's
Bit on Basketball
Suggestions for the Shaken
Parkinson's Action Network (PAN) Report
Our Brain’s “Negativity Bias”
Living for a Cure
Three Huge Changes for People with Parkinson's
Caregiving, the Next Level
Parkinson's Pundit
Perseverance
Making Spousal Relationships Work
Parkinson’s and Luck
Strength. Courage.
Resolve to be a Better Caregiver!
Update from the Parkinson's Action Network
Strategies to Achieve our New Year’s Resolutions and Goals
Movement is Medicine
Hello from Canada!
You can't do that!... Can you?
Behind the Scenes with Maria Cole, MSW
Aiming for Well-Being
Aiming for Well-being
Holiday Feasts, Family & Fun
Pause and Be Thankful
Diagnosis is a turning point, not a beginning
Behind the Scenes with Steve Wright
On the Practice of Gratitude
Thanks for Joining Us at the HOPE Conference for Parkinson's
Frozen Men
Is there anything good about Parkinson's Disease?
Understanding and Managing PD-Related Shame and Embarrassment
An Open Letter to My Family & Friends
Parkinson's Travel Tips
PD & Creativity
Living Conference Held in Boise
Caregiver Burnout - Write it Down!
How Could I Be So Wrong?
Medicine and Cognition
Take a Hint from PD
Taking the Park out of Parkinson's
Northera and Dizziness
Re-Prioritizing Hopes
Dairy & Gut Health in PD
Nature's Moments
One Step At A time
Antioxidant Diet
Common Medicines Common Side Effects
Parkinson's Posture
Parkinson’s Disease & Supplemental Security Income
Parkinson’s Paradoxes
Coming Out of the Caregiving Closet
Parkinson’s Disease Nutrition: Why is it Relevant?
The Importance of Care before Cure: NWPF’s Past, Present & Future
2013
You can't do that!... Can you?
Behind the Scenes with Maria Cole, MSW
Aiming for Well-Being
Aiming for Well-being
Holiday Feasts, Family & Fun
Pause and Be Thankful
Diagnosis is a turning point, not a beginning
Behind the Scenes with Steve Wright
On the Practice of Gratitude
Thanks for Joining Us at the HOPE Conference for Parkinson's
Frozen Men
Is there anything good about Parkinson's Disease?
Understanding and Managing PD-Related Shame and Embarrassment
An Open Letter to My Family & Friends
Parkinson's Travel Tips
PD & Creativity
Living Conference Held in Boise
Caregiver Burnout - Write it Down!
How Could I Be So Wrong?
Medicine and Cognition
Take a Hint from PD
Taking the Park out of Parkinson's
Northera and Dizziness
Re-Prioritizing Hopes
Dairy & Gut Health in PD
Nature's Moments
One Step At A time
Antioxidant Diet
Common Medicines Common Side Effects
Parkinson's Posture
Parkinson’s Disease & Supplemental Security Income
Parkinson’s Paradoxes
Coming Out of the Caregiving Closet
Parkinson’s Disease Nutrition: Why is it Relevant?
The Importance of Care before Cure: NWPF’s Past, Present & Future
Impulsive behaviors and activities: What is the cause?
Top medicines that worsen Parkinson’s disease or cause secondary parkinsonism
Is leg pain a symptom of Parkinson's?
Look beyond Parkinson’s when symptoms change quickly
Stem cells-what are they and how are they made?
Acting out your dreams- a sleep problem in Parkinson's disease
Are there recommendations for the best type of mattress for Parkinson's?
How can service dogs help Parkinson's?
Is your environment a high risk PD zone?
Is natural dopamine better than Sinemet?
Is marijuana helpful for Parkinson’s?
What is atypical parkinsonism and how does it differ from PD?
Does glutathione help Parkinson’s disease
What do I need to know about vitamins?
When do I need to see a physical therapist?
Can you give any additional information about Othello Syndrome in the context of PD?
What causes hallucinations?
How can I alert medical providers that I have DBS in an emergency? Can mammogram be done?
Top Ten Tips for Parkinson’s Disease- Tell us yours
Booth Gardner has touched the lives of so many
How do I best time doses of carbidopa/Ldopa?
My mom has PD and almost every evening, any time between ...
How does Parkinson's affect cognition? What can be done about it?
Absorption of Sinemet requires optimal GI health. Is anyone working on a sublingual delivery of the medication?
Can ultrasound treat Parkinson’s tremor?
2012
Top medicines that worsen Parkinson’s disease or cause secondary parkinsonism
Is leg pain a symptom of Parkinson's?
Look beyond Parkinson’s when symptoms change quickly
Stem cells-what are they and how are they made?
Acting out your dreams- a sleep problem in Parkinson's disease
Are there recommendations for the best type of mattress for Parkinson's?
How can service dogs help Parkinson's?
Is your environment a high risk PD zone?
Is natural dopamine better than Sinemet?
Is marijuana helpful for Parkinson’s?
What is atypical parkinsonism and how does it differ from PD?
Does glutathione help Parkinson’s disease
What do I need to know about vitamins?
When do I need to see a physical therapist?
Can you give any additional information about Othello Syndrome in the context of PD?
What causes hallucinations?
How can I alert medical providers that I have DBS in an emergency? Can mammogram be done?
Top Ten Tips for Parkinson’s Disease- Tell us yours
Booth Gardner has touched the lives of so many
How do I best time doses of carbidopa/Ldopa?
My mom has PD and almost every evening, any time between ...
How does Parkinson's affect cognition? What can be done about it?
Absorption of Sinemet requires optimal GI health. Is anyone working on a sublingual delivery of the medication?
Can ultrasound treat Parkinson’s tremor?
Most popular posts of 2012
What are you grateful for this holiday season?
How can I tell whether medications are wearing off or Parkinson’s disease is progressing?
Can a person with Parkinson’s give blood?
When is the right time to start Levodopa?
Can acupuncture help PD symptoms?
Support the Caregiver in your Life
Power of the mind to move treatment further
Top 10 Foods for Parkinson’s (and counting!)
How can I prevent dizziness?
What can you tell me about laser light therapy and Parkinson’s
What is music therapy?
Should I take Coenzyme Q10 for my Parkinson’s?
How do I treat my cough at night?
Parkinson’s fitness programs need to be tailored to the individual to get results
Carrying the Olympic Torch for Parkinson’s today
Coffee reduces risk of Parkinson’s. What about other foods?
Facts about depression
How can I find a good doctor who is knowledgeable about PD and is caring as well? My doctor does not always listen.
Help for constipation
Sex, Intimacy and Parkinson’s
Does DBS affect speech?
Walking and balance can significantly impact quality of life- but is treatable.
Depression is common with Parkinson’s
Ode to Parkinson’s- Poem from Member
Music Enhances Brain Activity
How does posture change with Parkinson’s?
What is important to you?
Are hallucinations caused by Parkinson’s?
Hot Off the Press – Neupro approved by FDA
How do I find a Parkinson’s physical therapist to keep me exercising?
Does Azilect slow disease progression?
Manage nausea from medicines
Is delaying medication harmful?
Advice for newly diagnosed
Is Parkinson’s Hereditary?
Medication Timing
Is gambling a side effect of medicine?
Medication Assistance
Does stress cause Parkinson’s?
When to see a physical therapist
FDA approves DATScan
Coconut Oil
Protein’s effect on medicine
Restless Leg Syndrome
What are you grateful for this holiday season?
How can I tell whether medications are wearing off or Parkinson’s disease is progressing?
Can a person with Parkinson’s give blood?
When is the right time to start Levodopa?
Can acupuncture help PD symptoms?
Support the Caregiver in your Life
Power of the mind to move treatment further
Top 10 Foods for Parkinson’s (and counting!)
How can I prevent dizziness?
What can you tell me about laser light therapy and Parkinson’s
What is music therapy?
Should I take Coenzyme Q10 for my Parkinson’s?
How do I treat my cough at night?
Parkinson’s fitness programs need to be tailored to the individual to get results
Carrying the Olympic Torch for Parkinson’s today
Coffee reduces risk of Parkinson’s. What about other foods?
Facts about depression
How can I find a good doctor who is knowledgeable about PD and is caring as well? My doctor does not always listen.
Help for constipation
Sex, Intimacy and Parkinson’s
Does DBS affect speech?
Walking and balance can significantly impact quality of life- but is treatable.
Depression is common with Parkinson’s
Ode to Parkinson’s- Poem from Member
Music Enhances Brain Activity
How does posture change with Parkinson’s?
What is important to you?
Are hallucinations caused by Parkinson’s?
Hot Off the Press – Neupro approved by FDA
How do I find a Parkinson’s physical therapist to keep me exercising?
Does Azilect slow disease progression?
Manage nausea from medicines
Is delaying medication harmful?
Advice for newly diagnosed
Is Parkinson’s Hereditary?
Medication Timing
Is gambling a side effect of medicine?
Medication Assistance
Does stress cause Parkinson’s?
When to see a physical therapist
FDA approves DATScan
Coconut Oil
Protein’s effect on medicine
Restless Leg Syndrome