PD Community Blog

Filtered by: 2015


Thursday December 24, 2015

Yes, I have Parkinson’s;
I’m the first of Jeff Camp’s sons;
As far as aunts, uncles and cousins.
I’m the only one!

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Managing the Holiday Blues

Friday December 18, 2015

The Holiday Season is here with its promise of joy. Many among us will indeed rejoice. Unfortunately many will not. As mental health professionals remind us every year, vulnerable individuals will experience the holiday as stressful, an occasion that activates (or augments) emotions such as sadness, loneliness, feelings of alienation — “the holiday blues.”

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Book Review: A Complete Guide for Patients and Families

Friday December 18, 2015

To live with Parkinson’s disease is to live in a world of changes—changes in our symptoms, changes in our ability to cope, changes in medication. The announced goal of the authors of Parkinson’s Disease is to “contribute to a foundation of knowledge for persons who are living with Parkinson’s disease in order to help them make healthy adjustments to these changes, to develop competency in self-monitoring and self-management, and to become effective partners in shared decision making with their physician” (xi). Those are noble goals, but this book does not fully achieve them.

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The joke is on Parkinson's

Friday December 11, 2015

We know that Parkinson’s can destroy our sense of smell, impair our sense of balance and threaten our sense of dignity. I just discovered recently there is at least one study that claims it can also undermine our sense of humor. The study, published in 2012 found that “Patients with PD have a decreased sense of humor compared to healthy controls. Utilizing audio methods of presentation and humor in an obvious mode appears to be the preferred approach for eliciting responses to humor in a PD population.” Please tell me they are pulling my restless leg.

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I don't always like groups, but when I do...

Tuesday December 08, 2015

Being required to attend a meeting or presentation under duress does not lend itself to a positive and productive experience. That brings us to a wonderful concept: choice. Choice is the primary difference between my experience with groups and the concept of a support group. Not only is attendance and participation voluntary, the content is chosen by the group.

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JBC + DBS: A Mostly-Love Story (Continued)

Friday December 04, 2015

Besides a knack for receiving brain surgeries, my dad is now proficient in sheltering animals. Luna is his latest tenant. In the first half of our interview, my dad and I haphazardly recounted his history with DBS. Here we continue the conversation.

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Rock Steady Boxing: Fred Hyde

Tuesday December 01, 2015

Resilience is one of the words that Fred uses to describe how Rock Steady Boxing training has improved his life with Parkinson’s. He talks about how he recovers more rapidly not only from classes, but also from downturns in everyday life, including the falls that are so common to people with Parkinson’s.

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Present Moment: A Continued Conversation

Friday November 27, 2015

At one point during the HOPE Conference several fellow PWPs asked me to blog about the presentation by Gary Vallat, his spouse Rubye and their daughter Aimie. ...In his poem, “Going Public,” Gary acknowledges that doing what he is doing, pre-senting at conferences or support groups, making the personal - public, is not an easy task. But it is a valuable one. It builds and integrates us to community. It helps us heal.

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Book Review: Navigating Life with Parkinson's Disease

Friday November 20, 2015

The nautical title of Navigating Life with Parkinson Disease is fitting. To be told that we have Parkinson’s or to find ourselves caring for or about someone who has Parkinson’s is to embark on a journey into strange seas. This book is designed to help us find our way in what are for most of us uncharted waters.

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JBC + DBS: A Mostly-Love Story

Friday November 06, 2015

It’s Friday, October 23rd, in Mukilteo, Washington. I’m sitting beside my dad’s blue recliner. Luna, the cat, perches on the armrest. We both have some questions for him: she, in regards to her dinner; me, in regards to DBS.

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