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PD Community Blog

Filtered by: 2014

Thanks for Joining Us at the HOPE Conference for Parkinson's

Monday November 03, 2014

With over 600 attendees, this was an exciting conference on many fronts! Our Keynote speaker, Tim Hague, winner of The Amazing Race Canada, spoke about his Parkinson's journey with candor. He earned a standing ovation from a very moved and inspired crowd.

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Frozen Men

Friday October 31, 2014

Check out this beautiful poem by the late Dennis Gale.

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Is there anything good about Parkinson's Disease?

Friday October 24, 2014

I was informed recently I have a “bad attitude” toward my disease. This got me thinking. Is there anything good about Parkinson’s Disease? Does its extensive resume of mayhem boast an item of community service I overlooked? Some instance of kindness or mercy I missed? Some redeeming quality everyone but me could see? Had I, Heaven forbid, done PD wrong?

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Understanding and Managing PD-Related Shame and Embarrassment

Friday October 17, 2014

Those of us living with PD often experience distressing shame and embarrassment secondary to some of our PD symptoms. When eating in public, for example, hand tremors can cause us to spill food all over the dining table and ourselves.

Shame, while frequently encountered by PWP’s, is infrequently discussed. There is irony at play. For many PWPs, it is embarrassing to talk about embarrassments.

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An Open Letter to My Family & Friends

Friday October 10, 2014

I've been thinking about how to compose this letter since I was diagnosed with early stage Parkinson's a few months ago. I just didn't know how to proceed, if at all. I thought about not telling anyone for a long time, as my manifestations of the disease are so minute. But it is very hard to keep something like this locked up inside.

So here we are.... I'd like to set the record straight. I'm still the same Gloria (for better or worse) and I happen to have a condition called Parkinson's Disease.

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Parkinson's Travel Tips

Thursday October 02, 2014

Follow these simple tips to insure a safe and comfortable experience when traveling.

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PD & Creativity

Friday September 26, 2014

What does Parkinson's tell us about creativity? About artists? Is creativity truly enhanced by PD therapies or is it there all along, dormant, only to be unmasked by them? Peter Dunlap-Shohl muses on PD and creativity.

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Living Conference Held in Boise

Wednesday September 24, 2014

Living with Parkinson’s disease (PD) was the focus of the recent Parkinson's focused conference held in Boise on Saturday, September 20 at St. Alphonsus Medical Center. Over 200 Parkinson’s patients and caregivers from Washington, Oregon, Montana and Idaho attended. The conference was co-presented by the Northwest Parkinson's Foundation and Parkinson's Resources of Oregon.

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Caregiver Burnout - Write it Down!

Monday September 15, 2014

Caregiver burnout is caused by emotional and physical stress that is associated with the toll caregiving can place on finances, social engagement and physical health. In this blog, we will explore simple things you can do to reduce the effect of caregiver strain on you.

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How Could I Be So Wrong?

Tuesday August 26, 2014

It’s hard to avoid a bit of hysteria on being diagnosed with Parkinson’s Disease. To be scientifically rational and ruthlessly objective is hard even under the best circumstances. Nobody would confuse a PD diagnosis with the best of circumstances. One could even argue a little hysteria is an under-reaction to news of being stalked by a disorder that relentlessly hollows out those it afflicts until death.

The grimmest part? You are helpless to stop it. How can this be? In our present days of miracle and wonder, we carry little magic tablets that can conjure images of loved ones and allow interaction from a continent away. We travel thousands of miles in a few hours, watching the clouds from above. We even return from death regularly in emergency rooms across the World, relieved, grateful, but not especially surprised. The fact that, in the midst of this everyday sorcery, we somehow forgot to cure Parkinson’s Disease seems almost negligent.

Talk about pent up demand! After all these years, we are eager to embrace whatever holds the promise of curing, or at least slowing the inexorable progression of this disease. So recent news that a phase three trial of CoQ10 came up empty was disappointing.

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