NWPF

PD Community Blog

Filtered by: motor symptoms

10 Things You Don't Know About PD

Monday February 13, 2017

When it comes to Parkinson’s Disease, many folks have a mental image of an elderly man, stooped and hunched over, with a slow, shuffling gait, a cane, soft spoken and with slurred speech—maybe even drooling. While true in some cases of advanced Parkinson’s, there are simply too many other symptoms and situations that render this stereotype incomplete and inaccurate. What follows are facts to help dispel the myths.

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Davis Phinney Foundation for Parkinson's: Preparing People to Meet Someone with Parkinson's

Monday January 30, 2017

"While I’m not afraid to tell people about my dad’s Parkinson’s at this point in my life, I am very deliberate about how I prepare people to meet him."

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Lies That Parkinson's Disease Told Me

Monday December 19, 2016

Yes, I should have known better than to trust Parkinson’s Disease. PD is not our friend. It spends its time and energy devising ways to mess us up. There seems to be no part of the human experience beyond the reach of this tireless troublemaker. I know this. So I should have been on my guard. But I believed when it whispered the following lies in my ear.

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Who Was That Masked Man?

Monday November 28, 2016

“You lookin’ at me?” The question was sharply confrontational. The inquisitor was a fit-looking and obviously volatile young man. The setting was a dimly lit street outside of a bar in a small town in Wyoming, and I was out past my bedtime.

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The Rain Is Shining — A Thanksgiving Message

Monday November 21, 2016

Thanksgiving gives us the opportunity to teach our friends and family, by our own example, how to deal with an unfortunate deal, how to smile through our mask, how to love what we have rather than wish we didn’t have it.

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Book Review - H.O.P.E.: Four Keys to a Better Quality of Life for Parkinson's

Tuesday November 15, 2016

One of the most engaging books about Parkinson’s disease was written by Hal Newsom, a Seattle-based advertising executive. Diagnosed at age 66, he lived with the disease for more than two decades. He was active in the Northwest Parkinson’s Foundation and helped start the annual HOPE Conference®, now in its eleventh year.

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Rhonda Foulds, Outrunning Parkinson's Disease

Monday October 10, 2016

Superman. Hercules. Rhonda Foulds. Three beings with preternatural strength. But only one of them is real. Real enough to be diagnosed with Parkinson’s Disease, back in 1999, at the age of 35. Why does an athlete with Parkinson’s Disease rate a mention with two legendary titans? Superman leaps tall buildings, Hercules dispatched the Hydra, and every day Rhonda Foulds trains for the 10 or so marathons she runs every year.

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Notes on Acceptance

Monday March 14, 2016

Us PwPs consider acceptance when our strategies of resistance are spent and we are feeling most vulnerable--and therefore more receptive to change. It should be noted that this is not a case of embracing naïve positive thinking. It is about shifting our perspective; it is about adopting positive reframing.

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Book Review: A Complete Guide for Patients and Families

Friday December 18, 2015

To live with Parkinson’s disease is to live in a world of changes—changes in our symptoms, changes in our ability to cope, changes in medication. The announced goal of the authors of Parkinson’s Disease is to “contribute to a foundation of knowledge for persons who are living with Parkinson’s disease in order to help them make healthy adjustments to these changes, to develop competency in self-monitoring and self-management, and to become effective partners in shared decision making with their physician” (xi). Those are noble goals, but this book does not fully achieve them.

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Leading the life of malicious whimsy

Friday October 09, 2015

A friend who underwent successful ​Deep Brain Stimulation surgery told me that now, with major motor problems sidelined, she was free to savor “the finer miseries of Parkinson’s.” Among these finer miseries​, I would include the malicious whimsy th​is​ disease inflicts on sufferers.

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