NWPF

PD Community Blog

Filtered by: Peter Dunlap-Shohl

The Parkinson's Holiday

Wednesday October 31, 2018

So you didn't know that there is an official holiday for Parkinson's? Yeah, it’s Halloween (rim shot, or spooky groan, your call).


Halloween is the time of year we set aside to recognize the importance of ghosts and ghouls and things that go bump in the night. I don’t know about you, but in addition going bump in the night, I often go bump in broad daylight! 


The following content describes an individual experience of Parkinson's, and we recommend that readers defer to their own comfort level with the subject matter before reading this post. NW Parkinson’s strives to recognize  and engage with a variety of perspectives and experiences relating to Parkinson’s. The below represents the opinions and judgements of the author only, and does not necessarily reflect those of Northwest Parkinson’s Foundation.

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Parkinson's Takes Guts

Monday July 31, 2017

Back in the good ol’ days, optimistic and inexplicably naive types would write sentences like "Parkinson’s will be the easiest of the neurodegenerative disorders to fix, because the problem is centered in one tiny structure in the brain." This belief fostered the idea that the cure for Parkinson’s was just around the corner, leaving patients angry and bitter when the cure did not materialize.

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Being Defined by Parkinson's Disease

Monday July 24, 2017

We all hate the idea of being defined by our disease. It’s why we tag ourselves with labels like “Parkinson’s Fighter” or say things like “I’ve got Parkinson’s, Parkinson’s doesn’t have me.” To be defined by PD is to be seen as somehow less of a person than you were before you acquired the tag.

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Don't Mistake Your Claws For Virtue

Monday July 17, 2017

The philosopher Nietzsche laughed at the “weaklings who thought themselves good because they had no claws.” A good point, but what about the the tough types who mistake their claws for virtue? Aren’t they just as ludicrous?

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Bicycling through Alaska Winter: Insanity, or Mere Stupidity?

Monday March 27, 2017

This is the fifth winter in Anchorage I have spent trying to get around mainly by bicycling. If you think it’s stupidity at best or even outright insane for anyone, let alone a person diagnosed 15 years ago with Parkinson’s Disease, to ride the icy dark streets of Anchorage in Winter, I have a certain amount of sympathy for your argument. Why would a person do such a thing?

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Parkinson's Rules

Monday February 27, 2017

Over the 14 years following my Parkinson’s Disease diagnoses I have developed a body of rules for living with PD. These are not “guidelines” or “suggestions.” The violation of these rules can result in severe consequences, up to and including death, of you, or someone accidentally standing in your vicinity. What are these rules, and what do you need to know about them?. Read on, and we’ll run through a few.

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Lies That Parkinson's Disease Told Me

Monday December 19, 2016

Yes, I should have known better than to trust Parkinson’s Disease. PD is not our friend. It spends its time and energy devising ways to mess us up. There seems to be no part of the human experience beyond the reach of this tireless troublemaker. I know this. So I should have been on my guard. But I believed when it whispered the following lies in my ear.

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Rhonda Foulds, Outrunning Parkinson's Disease

Monday October 10, 2016

Superman. Hercules. Rhonda Foulds. Three beings with preternatural strength. But only one of them is real. Real enough to be diagnosed with Parkinson’s Disease, back in 1999, at the age of 35. Why does an athlete with Parkinson’s Disease rate a mention with two legendary titans? Superman leaps tall buildings, Hercules dispatched the Hydra, and every day Rhonda Foulds trains for the 10 or so marathons she runs every year.

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Snake Oil, the Cure for Parkinson's.

Monday September 12, 2016

Ask a Snake Oil Salesman!

Did you know that Snake Oil will cure Parkinson’s Disease? It’s absolutely guaranteed! I see some of you furrowing your brows and looking at me all squinty-like, as if you don’t believe me. Oh ye of little faith! In spite of my hurt feelings, I will nevertheless be glad, eager even, to correct your sad paucity of vision, your cynical lack of faith.

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Tipping Points

Tuesday August 16, 2016

14 years into diagnosis, the falls still come as a surprise. One minute I’m upright and sailing along, the next the asphalt is rushing up at me. The alarms sound, the adrenaline spikes, the needles jump into the red, we’re going down! Shields up! SHIELDS UP!!!... But there are no shields. 180 pounds of vulnerable flesh and bone crashes to the earth. Damage control, report! Minor bruises, a worried wife, battered dignity, and foreboding about the future.

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