NWPF

PD Community Blog

Filtered by: Living with Parkinson's

Contributing to the Conversation of Healthcare: Rep. Eric Pettigrew on Access, Equity & Parkinson's

Tuesday June 16, 2020

The Parkinson's Project encompasses the ongoing work of uncovering gaps in Parkinson's care among African-Americans, and in bringing services, resources & connection to those who need it. In this conversation between Rep. Pettigrew and Bette Jane Camp, NW Parkinson's Programs & Communications Coordinator, the two discuss the Parkinson's Project, the intermingling roles of health, agency, community, and care.

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In Praise of Fear

Monday May 04, 2020

"Fear is the spur that can get you to exercise, to attend a support group, to educate yourself about Parkinson's and treatments, to be disciplined about your pill routine and physical therapy, to see your doctor regularly. Of course fear uncontrolled can lead to disaster. But so can an excess of bravery. The trick is to channel  your fear to work for you, to feel fear, but not succumb to it." Read here for the rest of Peter Dunlap-Shohl's latest post.

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NeedyMeds Prescription Assistance

Wednesday April 08, 2020

We know many people affected by Parkinson’s struggle with the budgetary impact of medications. Every day at NW Parkinson’s we work with people to identify sources of prescription financial assistance, so no one has to choose between basic necessities and filling a prescription to manage their Parkinson’s. In addition, NW Parkinson’s has partnered with NeedyMeds.org, a nationwide clearinghouse for prescription assistance and patient savings programs.  Read more about NeedyMeds.org and how to receive assistance!

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Corona Crystal Ball

Friday March 27, 2020

While our understanding of COVID-19 changes daily, Peter Dunlap-Shohl dares to make a few predictions: how will the aftermath of COVID-19 affect life with Parkinson's? Read on for a poignant and humorous take on telemedicine, healthcare, and more.

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Parkinson’s May Break My Bones

Thursday February 20, 2020

"[T]here was no getting around the swollen zigzag at the end of my arm. My left wrist had a clean break. It was the second broken bone I have suffered since my Parkinson’s diagnosis." Read the rest of Peter Dunlap Shohl's latest post!

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Wile E. Coyote, Spinoza, PD and Me 

Tuesday July 23, 2019

"The moment I realized there was going to be trouble, there was no time left to avoid it. I was rolling along at a respectable rate on a favorite part of a mid-town bike path, a  bridge over a bright stream flowing through a lush greenbelt. The sun was out and the beta endorphins were flowing. 

As I cruised across the bridge, my mind wandered. So did my bike." Read what happens next...and more in Peter Dunlap-Shohl's latest blog post!

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Living with Parkinson's in the NW: How to Plan for Wildfire Smoke

Tuesday July 09, 2019

As the Northwest region faces wildfires and smoke events, we'd like to offer preventative strategies for folks impacted by Parkinson's. Dr. Sverre Vedal, pulmonary physician and epidemiologist, shares resources and practical tips for navigating the health effects of wildfire smoke. Read the interview here!

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Wading without a Muse

Tuesday March 05, 2019

I just got an email from my muse. She's at a spa in Palm Springs and won't be any help with today's Tuesday with Terry. So I fired up Instagram, looking for inspiration.

Here's what I found: Baby Shark

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One Grunt, or Two? A Parkinsonian Dialogue

Friday February 08, 2019

Peter Dunlap-Shohl brings a light heart to a heavy symptom of Parkinson's: speech troubles. "In my 17th post-diagnosis year the most aggravation I get on a daily basis from Parkinson's is from problems with speech. I wonder how other animals get along without talking. I certainly can’t." Read more for a thoughtful - and amusing - Parkinsonian dialogue.

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One Look at Community: the Newest Women's Support Group

Monday February 04, 2019

A record number of women living with Parkinson’s turned out for the inaugural group meeting at the Evergreen Booth Gardner Parkinson’s Care Center on Tuesday, January 22, 2019! After listening to and working with the community, NW Parkinson's & EvergreenHealth helped to meet women with Parkinson's need for support. As the only independent local non-profit serving people affected by Parkinson’s in Alaska, Idaho, Montana &  Washington, NW Parkinson's works to help ensure that no one walks the Parkinson's journey alone. Here's how!

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