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PD Community Blog

Filtered by: Living with Parkinson's

You, Me & Parkinson Pete: on Living & Dying with Parkinson's

Monday January 25, 2021

"Pete will be the first to describe how he has (and hasn't) changed over the course of living with Parkinson's. He does so, brilliantly, in his latest book: "Parkinson Pete on Living and Dying with Parkinson's Disease" (2020). Significantly, Pete also shares his insight on that other half of Parkinson's: dying. This read is not always easy for the daughter of a person with Parkinson's; it is, however, consistently helpful, motivating, and funny. I'm lucky to know the dynamic author of this important book." Read Bette Jane and Pete's interview here!

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A Note at a Time

Monday December 21, 2020

"[L]ike any good poker player you eventually learn to deal with the hand PD dealt you. With Parkinson's, it doesn't hurt to have a card or two up your sleeve!...What could prove challenging, do-able with my changed skill-set, and possibly help slow my PD? Whatever it was it had to be fun! Enter the Native American Flute (abbreviated NAF)." Read and listen to Bill Clugston's joyful dedication to the NAF!

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Overlapping Symptoms

Monday November 02, 2020

"Parkinson’s comes with many symptoms, from tiny handwriting to loss of balance...you are simultaneously clinching the muscle that holds back what feels like the Mississippi River, pounding on the inside of your bladder, demanding to be released." Read more from Peter Dunlap-Shohl!

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Contributing to the Conversation of Healthcare: Rep. Eric Pettigrew on Access, Equity & Parkinson's

Tuesday June 16, 2020

The Parkinson's Project encompasses the ongoing work of uncovering gaps in Parkinson's care among African-Americans, and in bringing services, resources & connection to those who need it. In this conversation between Rep. Pettigrew and Bette Jane Camp, NW Parkinson's Programs & Communications Coordinator, the two discuss the Parkinson's Project, the intermingling roles of health, agency, community, and care.

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In Praise of Fear

Monday May 04, 2020

"Fear is the spur that can get you to exercise, to attend a support group, to educate yourself about Parkinson's and treatments, to be disciplined about your pill routine and physical therapy, to see your doctor regularly. Of course fear uncontrolled can lead to disaster. But so can an excess of bravery. The trick is to channel  your fear to work for you, to feel fear, but not succumb to it." Read here for the rest of Peter Dunlap-Shohl's latest post.

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NeedyMeds Prescription Assistance

Wednesday April 08, 2020

We know many people affected by Parkinson’s struggle with the budgetary impact of medications. Every day at NW Parkinson’s we work with people to identify sources of prescription financial assistance, so no one has to choose between basic necessities and filling a prescription to manage their Parkinson’s. In addition, NW Parkinson’s has partnered with NeedyMeds.org, a nationwide clearinghouse for prescription assistance and patient savings programs.  Read more about NeedyMeds.org and how to receive assistance!

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Corona Crystal Ball

Friday March 27, 2020

While our understanding of COVID-19 changes daily, Peter Dunlap-Shohl dares to make a few predictions: how will the aftermath of COVID-19 affect life with Parkinson's? Read on for a poignant and humorous take on telemedicine, healthcare, and more.

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Parkinson’s May Break My Bones

Thursday February 20, 2020

"[T]here was no getting around the swollen zigzag at the end of my arm. My left wrist had a clean break. It was the second broken bone I have suffered since my Parkinson’s diagnosis." Read the rest of Peter Dunlap Shohl's latest post!

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Wile E. Coyote, Spinoza, PD and Me 

Tuesday July 23, 2019

"The moment I realized there was going to be trouble, there was no time left to avoid it. I was rolling along at a respectable rate on a favorite part of a mid-town bike path, a  bridge over a bright stream flowing through a lush greenbelt. The sun was out and the beta endorphins were flowing. 

As I cruised across the bridge, my mind wandered. So did my bike." Read what happens next...and more in Peter Dunlap-Shohl's latest blog post!

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Living with Parkinson's in the NW: How to Plan for Wildfire Smoke

Tuesday July 09, 2019

As the Northwest region faces wildfires and smoke events, we'd like to offer preventative strategies for folks impacted by Parkinson's. Dr. Sverre Vedal, pulmonary physician and epidemiologist, shares resources and practical tips for navigating the health effects of wildfire smoke. Read the interview here!

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