NWPF

PD Community Blog

Filtered by: Diagnosis & Progression

A New Parkinson's Perspective

Tuesday May 29, 2018

Randall Huber offers a new way to view Parkinson's: he reimagines the window.

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Pete Beidler Reviews "A Parkinson's Life"

Thursday May 17, 2018

Parkinson's Pete reviews Jolyon Hallows' book, "A Parkinson's Life and a Caregiver's Roadmap".

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Introducing NWPF's New Social Services Manager: Sarah Winter, MSW, LICSW

Tuesday February 07, 2017

"NWPF has a wonderful culture of responsiveness to and engagement with the Parkinson's community. I hope to continue this work by building bridges with individuals, providers, and communities throughout our region so that people affected by PD can live their best lives."

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Book Review: The Perapatetic Pursuit of Parkinson Disease

Tuesday October 04, 2016

It is always good to hear about Parkinson’s from the people who know it best — the men and women who have the disease. The Peripatetic Pursuit of Parkinson Disease gives us a welcome window into the lives and thoughts of a wide variety such people.

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Tipping Points

Tuesday August 16, 2016

14 years into diagnosis, the falls still come as a surprise. One minute I’m upright and sailing along, the next the asphalt is rushing up at me. The alarms sound, the adrenaline spikes, the needles jump into the red, we’re going down! Shields up! SHIELDS UP!!!... But there are no shields. 180 pounds of vulnerable flesh and bone crashes to the earth. Damage control, report! Minor bruises, a worried wife, battered dignity, and foreboding about the future.

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Dare to Attend a Support Group

Monday August 01, 2016

You are in the early stages of Parkinson’s disease. You cope well with symptoms, and when your trusty meds are well adjusted, so are you. Most people, in the course of casual contact, can’t even tell you are undergoing a slow motion brain injury. Why should you clutter your busy schedule with a support group meeting?

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Ten for David

Monday July 25, 2016

On Saturday, June 4, 2016, Peter G. Beidler gave the opening remarks at a seminar on treatment options for Parkinson’s disease at a PD University seminar at Skyline in central Seattle. We asked him if we could publish his remarks in the Parkinson’s Post.

Content Warning: Death with Dignity

[This] is a realistic scenario that many who have Parkinson's or who love someone with Parkinson's will want to read. Some may find it depressing to learn in so much honest detail about what this disease can do to people, and to the families of people, with the disease.

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Alexithymia, the Parkinson’s Get Out of Jail Free Card

Monday May 16, 2016

Parkinson’s disease, ever the over-achiever, brings with it a host of symptoms. You’d think that gait disorder, freezing, tremor, micrographia, dyskinesia, depression, dystonia, hallucinations, apathy, drooling, loss of ability to talk, REM sleep disturbance and constipation, just to name a few, would be enough. But the list just keeps growing. The latest addition: alexithymia.

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Notes on Acceptance

Monday March 14, 2016

Us PwPs consider acceptance when our strategies of resistance are spent and we are feeling most vulnerable--and therefore more receptive to change. It should be noted that this is not a case of embracing naïve positive thinking. It is about shifting our perspective; it is about adopting positive reframing.

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"Advice" to a person with Advancing Parkinson's Disease

Friday March 04, 2016

A few weeks ago a social worker/counselor came to my apartment to help me examine how I was handling my advancing Parkinson’s Disease. ...I have no “advice” to give. What I can offer is my personal experience, for whatever way that may be of help to somebody.

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