NWPF

PD Community Blog

Outside the Ring: Rock Steady Boxing

Thursday April 05, 2018

On Friday, March 23, I accompanied my dad to his Rock Steady Boxing class in Snohomish, WA, where I had the opportunity to talk to Lacey Ramon, Certified Personal Trainer and Rock Steady Boxing Coach.

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Poetry & Parkinson's

Monday April 02, 2018

“How old is baseball?” I ask. “1850s,” my dad stoutly replies. Roy and Dean concur. The rest of the class nods appreciatively. And although sports are his jam, I can’t help but be skeptical of my dad’s immediate answer. Too many past infractions, if you know what I mean.

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Holding on to Hope

Thursday March 29, 2018

Life, with or without Parkinson’s, sometimes feels like a tug-of-war between hope and despair, with the part of the rope played by you. Despair pulls with a mighty undertow, dragging you down into an inky netherworld of pain, helplessness, and fear, then hope pulls fiercely in the opposite direction, toward the clean, well-lit promise of health and happiness.

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Confessions of a Pill Head

Tuesday March 20, 2018

I need a little help in trying to approximate normal. Okay, a bunch of help. My quixotic quest to be a regular guy instead of a quaking, shaking, slow-moving train wreck means I must take a few pills every day. Okay, okay, a heap of pills.

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Tackling PD Together

Tuesday March 13, 2018

Having support is needed in any major life event, especially if you are diagnosed with a disease. Many people who have Parkinson's often struggle with feelings of stress, anxiety, and depression. Luckily, having a support system can help. Pete Wilkinson from Seattle, Washington was diagnosed with PD in 2012, but he and his wife, Joeve, have filled their lives with optimism and the urge to tackle PD together.

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Pulling the Plug

Thursday February 15, 2018

Recently, a pharmaceutical giant announced it was pulling the plug on its pursuit of new medications for both Parkinson’s disease and Alzheimer's. This announcement comes in the face of the fact that demand for treatments for both these afflictions, driven by the aging baby boomers, is set to rise sharply over the coming decades. The message is clear: “We aren’t anywhere close to figuring out how to treat these diseases. We give up.”

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Five Important Questions: How Do I Make the Best Decision?

Wednesday February 07, 2018

Do you have any decision in your life that you are struggling with? Maybe it’s deciding to attend that Pedaling for Parkinson's class at the local YMCA or join a support group. Or maybe it’s making a decision about transitioning your loved one into an assisted living community. Maybe fear is standing in your way, you don’t feel capable, or you aren’t sure if now is the right time. Making a decision can be tricky and oftentimes, a bit overwhelming. Here are five important questions to ask yourself when making a decision. Are you ready? Let’s get started!

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Love Your Body Week

Thursday February 01, 2018

Many of us, whether we have Parkinson’s disease or not, struggle with the feeling of wanting our bodies to be different. Love Your Body Week is an idea that started in All That Dance, a dance studio in Seattle, Washington and was later picked up by National Honor Society for Dance Arts who turned Love Your Body Week into a nationwide campaign. Love Your Body Week is about celebrating what your body can do and being positive towards your body.

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A Review on Parkinson Pete’s Bookshelves

Thursday January 18, 2018

Parkinson Pete’s Bookshelves: Reviews of Eighty-Nine Books About Parkinson’s Disease by Peter G. Beidler addresses an unmet need, namely a resource that Parkinson’s patients, newly diagnosed and those who have been afflicted for a long time, can turn to as they repeatedly ask the question, “What’s next?” It’s also an invaluable resource for professionals such as doctors, librarians and other professionals who routinely are asked for credible resources.

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Why me?

Thursday January 11, 2018

It’s inescapable. It haunts all your worst moments. It’s a puzzle you might particularly dwell on in the frozen twilight of a bleak winter morning. It’s the question “Why me?” elaborated with “What have I done to deserve this?” The worst part? There is no answer.

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