NWPF

PD Community Blog

Falling Fashion, Dressing for Survival With Parkinson’s

Monday March 01, 2021

"As the flashbulbs pop, and the music blares, the first model shuffles down the runway! The crowd gasps as she shows off her avant garde ensemble: darling slip-on shoes, frisky sweat pants, a vintage t-shirt, set off with sporty knee and elbow pads, and topped with the piece de resistance, a bike helmet, complete with a dazzling LED headlamp." Read more about Peter Dunlap-Shohl's Falling Fashion here!

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Did you know that Parkinson’s can impact your hearing?

Monday February 22, 2021

"From talking with family and friends to healthcare providers, it can be challenging to communicate over the phone with others when you are experiencing hearing loss. We recognize the challenge faced by the Parkinson’s community who have lost some or all of their hearing, and those who were born d/Deaf or hard of hearing. That is why at NW Parkinson’s we are opening our doors to prepare to utilize services that allow us to communicate with individuals using telecommunication devices to reach individuals with Parkinson’s and their support networks facing this barrier." Read more from Michaelah Knarr, Master of Social Work intern!

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The Beauty of Slow

Monday February 01, 2021

"I went through my old repertoire and picked out the slowest tune I could remember playing, a whaling tune called “Farewell to Tarwathie”. Then I cranked up the volume, and something clicked. The notes rang and sustained beautifully through the amplifier, and took on warmth as the gain control added distortion to the tones. Think Jimi Hendrix goes whaling. (Did I just compare my playing with Hendrix?  Oops. Only in the broadest sense, okay?)" Read Peter Dunlap-Shohl's latest here!

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You, Me & Parkinson Pete: on Living & Dying with Parkinson's

Monday January 25, 2021

"Pete will be the first to describe how he has (and hasn't) changed over the course of living with Parkinson's. He does so, brilliantly, in his latest book: "Parkinson Pete on Living and Dying with Parkinson's Disease" (2020). Significantly, Pete also shares his insight on that other half of Parkinson's: dying. This read is not always easy for the daughter of a person with Parkinson's; it is, however, consistently helpful, motivating, and funny. I'm lucky to know the dynamic author of this important book." Read Bette Jane and Pete's interview here!

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Step at a Time

Tuesday January 19, 2021

"I put on the shoes and did a short routine. His eyes bugged out, and when I closed with a vertical leap and a click of the heels before touching down, his jaw dropped to the floor. It was by no means a world-class performance but It was my proudest Parkie Moment." Read more about Brian Supalla, from his new role as a support group leader to his recent, budding skill: step dancing!

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A Note at a Time

Monday December 21, 2020

"[L]ike any good poker player you eventually learn to deal with the hand PD dealt you. With Parkinson's, it doesn't hurt to have a card or two up your sleeve!...What could prove challenging, do-able with my changed skill-set, and possibly help slow my PD? Whatever it was it had to be fun! Enter the Native American Flute (abbreviated NAF)." Read and listen to Bill Clugston's joyful dedication to the NAF!

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The Power of Support Groups

Monday December 14, 2020

We spoke to a few facilitators from across the region about their group and experiences. We asked: what motivates you to take on a position like this, and what are some things that you’ve discovered through your experiences? Each has their own story of how they came into the Parkinson’s community, but one particular message is overwhelmingly clear: living with Parkinson’s may seem daunting, but there will always be a community there to support you.

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19 Years Into Diagnosis, What I did Right, and What I Got Wrong

Monday November 30, 2020

"Looking back from the lofty vantage point of my 19 year-old diagnosis, certain actions and decisions emerge as clearly constructive, and others as less so. In hopes of sparing those of you who are less advanced along the Parkinson's path some avoidable misery, here are major issues I got right, and things I got wrong." Read more from Peter Dunlap-Shohl!

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Spirit of the Season

Thursday November 19, 2020

The holidays remind us of our gratitude, as well as our ability
to lift others up. Terry Harrigan explains: "Helping others
helps us forget Parkinson's, and we end up with deeply valuable experiences. It can be about you...being about somebody else!".
Here are some safe and creative ways to capture the spirit
of the season!

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Overlapping Symptoms

Monday November 02, 2020

"Parkinson’s comes with many symptoms, from tiny handwriting to loss of balance...you are simultaneously clinching the muscle that holds back what feels like the Mississippi River, pounding on the inside of your bladder, demanding to be released." Read more from Peter Dunlap-Shohl!

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