NWPF

PD Community Blog

Book review: Shake Well Before Use

Friday March 18, 2016

Tom Isaacs will be familiar to anyone who attended the Northwest Parkinson’s Foundation’s 2015 HOPE conference in Seattle... Shake Well Before Use is Tom Isaacs’s detailed account of his year-long walk around the coastline of Britain. The book is many things: a photo-illustrated travelogue, a tribute to a deceased father and a loving mother, a fund-raising manual, a love story, a saga of a young man struggling to learn how to accept the questionable gifts that Parkinson’s delivered to him.

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Notes on Acceptance

Monday March 14, 2016

Us PwPs consider acceptance when our strategies of resistance are spent and we are feeling most vulnerable--and therefore more receptive to change. It should be noted that this is not a case of embracing naïve positive thinking. It is about shifting our perspective; it is about adopting positive reframing.

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"Advice" to a person with Advancing Parkinson's Disease

Friday March 04, 2016

A few weeks ago a social worker/counselor came to my apartment to help me examine how I was handling my advancing Parkinson’s Disease. ...I have no “advice” to give. What I can offer is my personal experience, for whatever way that may be of help to somebody.

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Needed: New Parkinson’s Vocabulary

Friday February 26, 2016

One of the less noticed challenges of Parkinson’s Disease is mastering the arcane vocabulary that describes the particulars of the disorder. If we want to speak clearly with our doctors and others about what ails us, we have to use strange words like “dyskinesia,” “festination,” “dystonia,” and “bradyphrenia.” Words that are fun to say on their own, but even more fun to rattle off as part of a sentence. “In spite of severe dystonia, she managed to festinate across the room.”

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Caregiving: Ken's Story

Friday February 12, 2016

When I started attending PD caregiver support groups I was impressed by the heroic stories of difficult caregiving needs and caregiver efforts.

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A Well-Tested Testimonial, or Spin for Parkinson's

Friday February 05, 2016

We all have stories. For those of us affected by Parkinson’s disease, the “beginnings” are especially poignant. Of course, the “middles” and “ends” are significant, too! But that first loss, and gain are determined. Indeed, those first sticky words (either the doctor’s or your own) hang onto the sides of memory a bit longer than the rest.

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Safety with Style: House design ideas you can hold on to

Friday January 29, 2016

The entry door opens in. Next, are there ways to prevent falls once inside?

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Caregiving: Susan's Story

Tuesday January 26, 2016

I am a caretaker by nature and reveled in sharing life with Joe, my husband of 28 years, as well as being a mother to our 3 sons. We fought hard, enduring 8 miscarriages, but life was sweet in those early years.

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Rock Steady Boxing: Emily

Tuesday January 19, 2016

“I LOVE hitting the bag: it's so satisfying! I can channel all my frustration and stress into those punches. When I leave the gym I feel as if I've left all my stress behind.” This is a refrain that is common within the Rock Steady Boxing community, and throughout the larger boxing and martial arts communities.

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Book Review: My Degeneration, A Journey Through Parkinson's

Friday January 15, 2016

Peter Dunlap-Shohl was an editorial cartoonist, one of those journalists who draw witty caricatures of people in the news, usually making fun of them. He had fun doing that. Then, at age 43, the real fun began for Peter. He was diagnosed with early-onset Parkinson’s Disease.

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