NWPF

PD Community Blog

Boxing is cool

Friday April 29, 2016

Boxing is cool. Not just because you can hit the heavy bag, but because we're expected to respect and follow the discipline. And wearing wraps on your hands makes me feel totally [hardcore]!

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Safety with Style: House Renovations you can hold on to

Monday April 25, 2016

Instead of simply dictating what to install and where, I tried to give the contractor a sense of some of the challenges of PD. I figured that if he understood the movement disorder better, he’d be able to come up with suggestions.

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Book review: On My Own

Friday April 15, 2016

Content Warning: Personal account of Voluntary Stop Eating and Drinking (VSED) and losing a spouse to Parkinson's

[This] is a realistic book that many who have Parkinson’s or who love someone with Parkinson’s will want to read. Some may find it depressing to learn in so much honest detail about what this disease can do to people, and to the families of people, with the disease. It is not always a pretty story, but it is a lovely one.

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Shaken to the Core

Wednesday April 13, 2016

It’s started. But, I took an extra dose. Oh gosh, they’re looking. Where was I? Now it’s getting worse, because they’re looking. Make it STOP! Telling myself that is NOT working! Now, I’m rambling. I’m just going to close.

“So how did I do on time?” I asked. Out of a 10-minute presentation, “It was 5 minutes.”

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Isolation and Parkinson's Disease, The hiding and the hidden

Friday April 08, 2016

Studies have found that social interaction lessens depression, a common problem associated with Parkinson’s, and that interactions with family and friends increase mental stimulation. These, are well-recognized factors in their importance in coping with PD.

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Camp Brian Interview

Friday April 01, 2016

It’s towards the end of 2015. The sound and the sky are a contended gray. They poke out from over the hedges, and over the warehouse of the carpet store next-door. My dad and I are in our usual places: blue recliner and blue sofa (respectively). The sofa is velvet; it’s also my brother’s favorite resting place, when he visits from school. ...
Bette Jane: So, let's start from the beginning.

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Safety with Style: House design ideas you can hold on to

Friday March 25, 2016

Contemporary or dating back a century, wood floors emit a warm invitation to enter, slip off your shoes, glide in. Those of us with movement disorders, however, don’t ‘slip off’ our shoes. We sit down. We unlace. We tug. And we shuffle more than glide, unless there’s a rug involved. Then we’re likely to trip.

That’s when the “hard” part of hardwood floors takes on meaning.

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Book review: Shake Well Before Use

Friday March 18, 2016

Tom Isaacs will be familiar to anyone who attended the Northwest Parkinson’s Foundation’s 2015 HOPE conference in Seattle... Shake Well Before Use is Tom Isaacs’s detailed account of his year-long walk around the coastline of Britain. The book is many things: a photo-illustrated travelogue, a tribute to a deceased father and a loving mother, a fund-raising manual, a love story, a saga of a young man struggling to learn how to accept the questionable gifts that Parkinson’s delivered to him.

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Notes on Acceptance

Monday March 14, 2016

Us PwPs consider acceptance when our strategies of resistance are spent and we are feeling most vulnerable--and therefore more receptive to change. It should be noted that this is not a case of embracing naïve positive thinking. It is about shifting our perspective; it is about adopting positive reframing.

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"Advice" to a person with Advancing Parkinson's Disease

Friday March 04, 2016

A few weeks ago a social worker/counselor came to my apartment to help me examine how I was handling my advancing Parkinson’s Disease. ...I have no “advice” to give. What I can offer is my personal experience, for whatever way that may be of help to somebody.

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