PD Community Blog

Don't Mistake Your Claws For Virtue

Monday July 17, 2017

The philosopher Nietzsche laughed at the “weaklings who thought themselves good because they had no claws.” A good point, but what about the the tough types who mistake their claws for virtue? Aren’t they just as ludicrous?

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A Day in the Life of a Parkinson Warrior

Monday April 10, 2017

It’s been said that if you’ve met one person with Parkinson’s Disease, you’ve met one person with Parkinson’s. That’s because each person with PD presents differently—despite several common possible symptoms. There are at least five common motor symptoms of PD (including tremors, balance issues, slowness, freezing and dystonia [uncontrollable movements]) and well over fifteen non-motor symptoms. The number of possible combinations are immense... No wonder Parkinson’s is called a snowflake disease—every instance is unique.

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Who Needs PAM?

Monday April 03, 2017

What can you do during Parkinson’s Awareness Month? Find a way to take action to bring a little color, a little laughter, a little April into the life of someone you know with this disease.

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Bicycling through Alaska Winter: Insanity, or Mere Stupidity?

Monday March 27, 2017

This is the fifth winter in Anchorage I have spent trying to get around mainly by bicycling. If you think it’s stupidity at best or even outright insane for anyone, let alone a person diagnosed 15 years ago with Parkinson’s Disease, to ride the icy dark streets of Anchorage in Winter, I have a certain amount of sympathy for your argument. Why would a person do such a thing?

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Pay It Forward

Monday March 20, 2017

If not us, who? If not now, when? Those two questions have become my personal mantra. As a person with a chronic (it isn’t going away) and progressive (it is going to get worse) disease, I believe I have a personal responsibility to participate in medical research—even though it is doubtful that I will ever see the benefit.

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Book Review: Dealing and Healing with Parkinson's Disease and Other Health Conditions

Monday March 13, 2017

Long noted and well-respected voices in the Parkinson’s community, Karl and Angela Robb have applied their many years of knowledge and insight into creating a companion workbook for Karl’s successful A Soft Voice in a Noisy World. Diagnosed with Parkinson’s at age 23, Karl’s entire adult life has been lived as an experiment in how to live a fulfilling life in spite of, or actually, because of, his relationship with Parkinson’s.

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Parkinson's Rules

Monday February 27, 2017

Over the 14 years following my Parkinson’s Disease diagnoses I have developed a body of rules for living with PD. These are not “guidelines” or “suggestions.” The violation of these rules can result in severe consequences, up to and including death, of you, or someone accidentally standing in your vicinity. What are these rules, and what do you need to know about them?. Read on, and we’ll run through a few.

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Book Review: Everybody Has a Window and Aisle Seat

Friday February 17, 2017

The first question a prospective reader will want answered about this book is what its title means. Mary Huston McLendon seems to believe that it is better to choose the window seat on the journey with Parkinson’s.

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10 Things You Don't Know About PD

Monday February 13, 2017

When it comes to Parkinson’s Disease, many folks have a mental image of an elderly man, stooped and hunched over, with a slow, shuffling gait, a cane, soft spoken and with slurred speech—maybe even drooling. While true in some cases of advanced Parkinson’s, there are simply too many other symptoms and situations that render this stereotype incomplete and inaccurate. What follows are facts to help dispel the myths.

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Introducing NWPF's New Social Services Manager: Sarah Winter, MSW, LICSW

Tuesday February 07, 2017

"NWPF has a wonderful culture of responsiveness to and engagement with the Parkinson's community. I hope to continue this work by building bridges with individuals, providers, and communities throughout our region so that people affected by PD can live their best lives."

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