NWPF

PD Community Blog

Middle Ground: Parkinson’s as a Cosmic Joke

Thursday June 25, 2020

David Schneider brings a frankness and an iron-laden sense of humor to life with Parkinson's, and to the NW Parkinson's community. He writes, "Given its invasive nature, I’ve found it useful to devise an overarching, philosophical framework that can serve to take the measure of Parkinson's and to manage its vicissitudes. This kind of an approach amounts to, for lack of a better word, an effort to 'demystify' the ailment and its effects." Read more here!

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Contributing to the Conversation of Healthcare: Rep. Eric Pettigrew on Access, Equity & Parkinson's

Tuesday June 16, 2020

The Parkinson's Project encompasses the ongoing work of uncovering gaps in Parkinson's care among African-Americans, and in bringing services, resources & connection to those who need it. In this conversation between Rep. Pettigrew and Bette Jane Camp, NW Parkinson's Programs & Communications Coordinator, the two discuss the Parkinson's Project, the intermingling roles of health, agency, community, and care.

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Expendable

Monday June 01, 2020

"Have we really reached the point where we must throw someone overboard, or do options remain that are unexplored? What else can we do? According to Jeremy Howard, distinguished research scientist at University of California, San Francisco, there is ample evidence spread of the virus could be significantly slowed, if, in addition to hand washing and social distancing, we would all mask up." Read more from Peter Dunlap-Shohl here!

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"Make Her Heard": Poetry by Janice Holland-Hill read by her daughter, Kate

Tuesday May 19, 2020

Jan's young-onset diagnosis of Parkinson's shapes their family's lives; in this episode, we step into the pain as well as the beauty of those changes. Her daughter Kate walks us through "The Road" on Parkinson's & Poetry: Listen to Kate's reading and conversation here!

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The Poem Takes Charge: Gary & Rubye Vallat

Friday May 08, 2020

When weighed down, what lifts us? Poetry can sometimes be that antigravity, that "outward expression of an inner being", as Gary Vallat puts it. He describes too what it's like to go public with Parkinson's; his wife and carepartner Rubye also shares some wonderful advice for life amid COVID-19. Read and take a listen of this latest episode of Parkinson's & Poetry.

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In Praise of Fear

Monday May 04, 2020

"Fear is the spur that can get you to exercise, to attend a support group, to educate yourself about Parkinson's and treatments, to be disciplined about your pill routine and physical therapy, to see your doctor regularly. Of course fear uncontrolled can lead to disaster. But so can an excess of bravery. The trick is to channel  your fear to work for you, to feel fear, but not succumb to it." Read here for the rest of Peter Dunlap-Shohl's latest post.

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Why We Show Up Each Day: Poetry with Jordan Whitley

Thursday April 30, 2020

In this episode of Parkinson's & Poetry, Jordan reads "The Apple Orchard" by Marjorie Laughlin with lichened elegance. Jordan and Bette Jane chat about what it means to be a poet as well as why we show up each day with the NW Parkinson's community. Read & listen here!

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Social Work, T. & the NW Parkinson's Community

Monday April 20, 2020

T. Christopher Crandall started as a practicum student and is now a NW Parkinson's social services provider and soon-to-be Master of Social Work through the University of Washington. Listen to his contribution to the NW Parkinson's community and to Parkinson's & Poetry in his reading of "Icicle Creek (Still Life)" by community member and poet Marjorie Laughlin.

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NeedyMeds Prescription Assistance

Wednesday April 08, 2020

We know many people affected by Parkinson’s struggle with the budgetary impact of medications. Every day at NW Parkinson’s we work with people to identify sources of prescription financial assistance, so no one has to choose between basic necessities and filling a prescription to manage their Parkinson’s. In addition, NW Parkinson’s has partnered with NeedyMeds.org, a nationwide clearinghouse for prescription assistance and patient savings programs.  Read more about NeedyMeds.org and how to receive assistance!

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When the Personal is Universal: Judy & Steve Wood

Monday April 06, 2020

Steve Wood reached out to NW Parkinson's with his mother's poem. In the latest episode of Parkinson's & Poetry, Steve gives a lovely reading of "December 2000" by Judy Wood. He also chats about life impacted by art and Parkinson's with Bette Jane Camp, Programs & Communications Coordinator. View the poem and podcast here or read more.

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