NWPF

PD Community Blog

Wake Up America!

Monday August 03, 2020

Caution: The following post contains satire. Avoid reading if satire-impaired! 

News Item: Doctor who went viral with unproven coronavirus 'cure' claims demon dream sex causes health problems ~ Washington Examiner

Boy, have we been barking up the wrong tree like a dyslexic dog, trying to attack Parkinson’s through painstaking, stringent, and it has to be said, borrrrrring science. We’ve been applying this method for years without any results, (er... aside from levodopa, DBS, and benefits of exercise.) Isn’t it time we tried something else?

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Power of Speech

Monday July 27, 2020

"As humans, we try to be better versions of ourselves every day- we go to the gym, we pray etc., and a diagnosis of Parkinson's shouldn’t change that. Help is available- for the gradual decline in memory that may be leading to falls, for the swallowing problems, coughing and weight loss that you may have noticed and of course- for the soft voice." Read more from Urvi Solanki, Speech Pathologist and granddaughter of a person with Parkinson's.

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The Daily Gardening of Compassionate Neuroscience

Thursday July 09, 2020

"My dad moved in with my partner and me about two months ago. I've since discovered that I don't know his health (or mine) nearly as well as I thought I did." Read more for an essay on compassionate neuroscience and caregiving as an adult child of a person with Parkinson's.

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Congratulations Survivor

Wednesday July 01, 2020

"If you’re reading this, congratulations! You are a survivor. You didn’t get this far without surfing some mammoth waves. You face Parkinson’s, Covid-19, the convulsions on the streets, the shaking of the very foundations of our country, and yet, here you are, still standing, possibly stooped, but keeping on."

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Middle Ground: Parkinson’s as a Cosmic Joke

Thursday June 25, 2020

David Schneider brings a frankness and an iron-laden sense of humor to life with Parkinson's, and to the NW Parkinson's community. He writes, "Given its invasive nature, I’ve found it useful to devise an overarching, philosophical framework that can serve to take the measure of Parkinson's and to manage its vicissitudes. This kind of an approach amounts to, for lack of a better word, an effort to 'demystify' the ailment and its effects." Read more here!

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Contributing to the Conversation of Healthcare: Rep. Eric Pettigrew on Access, Equity & Parkinson's

Tuesday June 16, 2020

The Parkinson's Project encompasses the ongoing work of uncovering gaps in Parkinson's care among African-Americans, and in bringing services, resources & connection to those who need it. In this conversation between Rep. Pettigrew and Bette Jane Camp, NW Parkinson's Programs & Communications Coordinator, the two discuss the Parkinson's Project, the intermingling roles of health, agency, community, and care.

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Expendable

Monday June 01, 2020

"Have we really reached the point where we must throw someone overboard, or do options remain that are unexplored? What else can we do? According to Jeremy Howard, distinguished research scientist at University of California, San Francisco, there is ample evidence spread of the virus could be significantly slowed, if, in addition to hand washing and social distancing, we would all mask up." Read more from Peter Dunlap-Shohl here!

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"Make Her Heard": Poetry by Janice Holland-Hill read by her daughter, Kate

Tuesday May 19, 2020

Jan's young-onset diagnosis of Parkinson's shapes their family's lives; in this episode, we step into the pain as well as the beauty of those changes. Her daughter Kate walks us through "The Road" on Parkinson's & Poetry: Listen to Kate's reading and conversation here!

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The Poem Takes Charge: Gary & Rubye Vallat

Friday May 08, 2020

When weighed down, what lifts us? Poetry can sometimes be that antigravity, that "outward expression of an inner being", as Gary Vallat puts it. He describes too what it's like to go public with Parkinson's; his wife and carepartner Rubye also shares some wonderful advice for life amid COVID-19. Read and take a listen of this latest episode of Parkinson's & Poetry.

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In Praise of Fear

Monday May 04, 2020

"Fear is the spur that can get you to exercise, to attend a support group, to educate yourself about Parkinson's and treatments, to be disciplined about your pill routine and physical therapy, to see your doctor regularly. Of course fear uncontrolled can lead to disaster. But so can an excess of bravery. The trick is to channel  your fear to work for you, to feel fear, but not succumb to it." Read here for the rest of Peter Dunlap-Shohl's latest post.

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