NWPF

PD Community Blog

Unlearning to Walk

Wednesday September 01, 2021

"One of the most frustrating things about Parkinson’s is losing skills you worked hard to master, skills fundamental to everyday existence and formerly performed easily without a second thought. Take walking. 


Walking is described as a series of controlled falls. Walking with advanced PD can be described as a series of uncontrolled falls. While falling can be a blow to your self-esteem, it can raise your opinion of your fellow humans. To see another person fall awakens the empathic response in many people. A visible tumble will elicit cries of “Are you alright?” from total strangers, who will make a fuss over you, offering comfort and advice, ignoring the normal custom of avoiding involvement with people they don’t know." Read more from this latest blog post by Peter Dunlap-Shohl.

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Celebrate! with Tim Fletcher, PD Link Volunteer

Monday August 30, 2021

Tim Fletcher is a PD Link Volunteer and 2021 Celebrate! speaker: you can catch his story of HOPE in Action on October 1!

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Louis the Road Warrior: HOPE in Action

Thursday August 12, 2021

A Road Warrior is someone who is ready to get in the trenches with people with Parkinson's; this year, NW Parkinson's is celebrating HOPE in Action. Louis is a brilliant example of both!


When the Poulsbo Support Group for people with Parkinson's needed a last-minute speaker, they asked NW Parkinson's for any suggestions. We introduced the group to Louis so that they could decide if he would be a good fit for their meeting...read more here! To register for Celebrate!, click HERE!

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Coping with Decline

Monday August 02, 2021

"You manage your meds well, see your doctor regularly and exercise maniacally. But you still feel Parkinson’s (PD) creeping up on you. Your speech is less audible, your step less sure, your body marked by the scrapes and bruises left from falls. What do you do now? How do you cope when you’re doing all you can?


Remember that Parkinson’s symptoms can fluctuate from day to day, what you may be experiencing is not necessarily going to be the same tomorrow, it may be worse, it may be better. You need to keep doing what you can to resist the undertow, to not let the possibility of a potentially bleak future steal from the present." Read more from Peter Dunlap-Shohl!

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Celebrate! with Kathy Shao

Thursday July 22, 2021

Hello! I’m Kathy Shao, a student volunteer with the Northwest Parkinson’s Foundation (NW Parkinson's). This fall, I’ll be a sophomore at Mercer Island High School, and I've been living in the Pacific Northwest for the past 4 years. Working with NW Parkinson's is always such a pleasure, and I’m so excited to be on the Celebrate! Committee for our biggest annual fundraiser of the year!

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Advanced Care Planning & the VA Caregiving Summit

Friday July 09, 2021

"On June 24th, 2021, I had the opportunity take part in the 2nd Annual VA Caregiver Summit “Inclusive Care: Empowering and Engaging Family Caregivers as Partners in Care”...The topic that resonated the most with me was a presentation by Dr. David Brecher titled “Advanced Care Planning: What, When and Why”. This is a topic that is not often talked about until an “accident” or “life event” happens which usually results in a trip to the ER or hospital." Read more from Andrew Price, Social Services Manager!

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Keeping an Eye on Parkinson’s

Thursday July 01, 2021

Parkinson’s disease (PD) has an admirable work ethic. It is laying for you 24/7, 52 weeks of the year...How do you live well with such a dedicated, tireless opponent constantly in your face? An enemy with such an array of tools at its disposal? 


You have to be as relentless as PD.  

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Parkinson's Toolkit

Tuesday June 01, 2021

You’ve got Parkinson’s? Better pack your tool kit. 


What goes in it? Here are some of the essentials.


Patience. If you’re not good at this, you need to practice. Everything takes longer with Parkinson’s, from tying your shoes to crossing a room, to formulating and speaking a sentence. It is maddening to shuffle through “off” periods when it can be torture to do everyday things like unload the dishwasher or do laundry. The only way to do this is one… step… at…a… time… patiently.

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Navigating Email Overload

Tuesday May 25, 2021

The pandemic has put many of us in an email overload — it's been a popular way to reach each other. When our inbox is jam-packed on a daily basis, though, some of these connections feel more like spam! Here are some tips to help balance out the communications we want and need, and those we don't.

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Thank you! We Walked for Parkinson's

Wednesday May 12, 2021

When you Put Your Purple On May 8, you helped raise awareness of Parkinson's.


When you safely Walked, you moved our small, mighty & independent nonprofit another step forward.


When you raised funds, you helped us bring FREE social services, educational programs, research updates, resources, and advocacy to communities impacted by Parkinson's in the Northwest!


Together, we raised:
$66k and counting!

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