NWPF

PD Community Blog

"Connecting People with Parkinson's"

Tuesday December 03, 2019

2019 has been a busy year for NW Parkinson's. Through it all, we found that the need for meaningful support, care, and connection is still so great. We need your help. Over the next month, as you read the stories of those who experienced our work this year, please consider making a difference in the lives of our Parkinson's community by donating to NW Parkinson's Foundation this holiday season.


Check out the 2019 Kalispell Parkinson's Days Here!

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It Could Be Worse

Friday November 15, 2019

"Everyone deals with bumps in the road differently. When I was first diagnosed with Parkinson's, I went with the old standby: denial. I came across the following story online; it is an example of what I call It Could be Worse." Read on for more of volunteer Terry Harrigan's perspective-changing point of view!

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Drug Price Reforms Can’t Come at Cost to Access

Tuesday November 12, 2019

For many of us in the NW Parkinson's community, access to the right health care is something we spend much of our time thinking about, planning for, and even dreading. Drawing from her work and connection with those impacted by Parkinson's, NW Parkinson's Executive Director Melissa Tribelhorn advocates for the crucial access to care in this op-ed.

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The Man in the Bed 

Wednesday October 30, 2019

"...in the end it can never define us completely." In his latest post, Peter Dunlap-Shohl mined and shared a song about Parkinson's: The Man in the Bed by Dave Alvin. Peter takes an honest, thoughtful look at these lyrics - the way he does life with Parkinson's. 

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A Sea of Troubles

Tuesday October 01, 2019

“To be, or not to be: that is the question: Whether 'tis nobler in the mind to suffer the slings and arrows of outrageous fortune, Or to take arms against a sea of troubles, and by opposing end them?”- Shakespeare, “Hamlet” Warning: this post discusses suicide.

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Living with the Losses of Chronic Disease

Friday September 06, 2019

Most of us will, at some point in our lives, watch a loved one steadily diminish by illnesses like Parkinson’s, multiple sclerosis, Alzheimer’s, fibromyalgia, rheumatoid arthritis, and many others. For some of us, the process happens to the person we see every day in the mirror.

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Things To Avoid Saying to a Person with Parkinson’s

Thursday August 29, 2019

"What can I say? It’s a free country. You can declare, utter, intone or even verbalize whatever you like (Almost). But if you want to spare your friend/acquaintance/loved one who has Parkinson's some silent tooth-gnashing, here are a few things to avoid saying to them."

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"Mutual Honesty": A Conversation with Sailor West

Wednesday August 14, 2019

In case you've missed her, Sailor West has written wonderful interviews with community members, including her friend Debbie and her dad. This time, Sailor's the interviewee! Read our intern Emma's in-depth conversation with Sailor to learn how the soon-to-be high school senior navigates life impacted by Parkinson's - and life that's not.

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Al Greenwood's Journey with Parkinson's

Wednesday August 07, 2019

Al’s a pretty unique guy—he's also Patient 001 for a new type of DBS battery. In this post, our Programs & Communications intern Emma shares about DBS, Al, and living a life with HOPE in the NW Parkinson’s community. 

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You Say You Want a Renovation

Tuesday July 30, 2019

"After fifteen years with Parkinson’s and only fifteen months into a home remodel, I was surprised that the questions are the same.


How long?


How are you holding up?


How’s your marriage?


To transform a 1970s ranch into a cozy house was daunting. It had minimal insulation, questionable chimneys, sketchy wiring and windows that froze on the inside. And, there was another caveat, a double-header: Our new space needed to be Parkinson’s-friendly, but without looking like it. Aging-in-place smart (degenerating in place somehow doesn’t hold the same ring). Safe, but with style." Read more about Renee's experience throughout the aging-in-place renovation process!

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