PD Community Blog

Present Moment: A Continued Conversation

Friday November 27, 2015

At one point during the HOPE Conference several fellow PWPs asked me to blog about the presentation by Gary Vallat, his spouse Rubye and their daughter Aimie. ...In his poem, “Going Public,” Gary acknowledges that doing what he is doing, pre-senting at conferences or support groups, making the personal - public, is not an easy task. But it is a valuable one. It builds and integrates us to community. It helps us heal.

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Book Review: Navigating Life with Parkinson's Disease

Friday November 20, 2015

The nautical title of Navigating Life with Parkinson Disease is fitting. To be told that we have Parkinson’s or to find ourselves caring for or about someone who has Parkinson’s is to embark on a journey into strange seas. This book is designed to help us find our way in what are for most of us uncharted waters.

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JBC + DBS: A Mostly-Love Story

Friday November 06, 2015

It’s Friday, October 23rd, in Mukilteo, Washington. I’m sitting beside my dad’s blue recliner. Luna, the cat, perches on the armrest. We both have some questions for him: she, in regards to her dinner; me, in regards to DBS.

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Present Moment

Tuesday November 03, 2015

"Present Moment is a collaborative film project documenting a family negotiating the realities of a longterm, degenerative illness: Parkinson's Disease. The film is a celebration of living life well -- despite whatever health challenges one might face. Our protagonist's wisdom, honesty and courage inspires the viewer while reminding them of their own innate resiliency." - REEL WITNESS

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On the scent of Parkinson’s disease

Friday October 30, 2015

That shaking that you felt over the last few weeks was the Parkinson’s Disease world getting rocked by the news that a Scottish woman can detect PD by a subtle “musky” odor given off by those afflicted with the disorder. This is good, if typically weird, Parkinson’s news.

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Harold Allen (Hal) Newsom

Tuesday October 27, 2015

Harold (Hal) Allen Newsom

Our Man of La Mancha rode off into the sunset on Thursday, October 22, 2015. His life journey proved that by dreaming the impossible dream much could be accomplished.

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The 2016 World Parkinson’s Congress in Portland, Oregon is Fast Approaching: Make Plans to Attend

Friday October 23, 2015

I attended the Montreal event in 2013 and will be participating in the one in Portland in September, 2016. I invite you to do the same. You will not be disappointed. Read more.

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Flowers on Dr. Starr's Tie

Friday October 16, 2015

In my last post, I recounted about half of my dad and my caffeinated adventure in San Francisco. The best has been saved for last. In fact, I break it down into acts: (I) Pete’s Deli on Divisadero Street Experience; (II) Dr. Starr and the Surgical Movement Disorders Center Experience.

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Leading the life of malicious whimsy

Friday October 09, 2015

A friend who underwent successful ​Deep Brain Stimulation surgery told me that now, with major motor problems sidelined, she was free to savor “the finer miseries of Parkinson’s.” Among these finer miseries​, I would include the malicious whimsy th​is​ disease inflicts on sufferers.

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Listen: Unlocking Parkinson's Disease

Tuesday September 29, 2015

Science Friday - In 1985, science journalist Jon Palfreman investigated a group of drug addicts who were struck with Parkinson’s-like symptoms after taking tainted heroin. Thirty years later, Palfreman was diagnosed with Parkinson’s disease. In his book Brain Storms, he describes having Parkinson’s as “going on vacation in another country and having to drive on the ‘wrong’ side of the road.” Palfreman describes his own journey with the disease and discusses new treatments for Parkinson’s patients.

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