NWPF

PD Community Blog

Book Review - Lucky Man: A Memoir

Monday May 23, 2016

There is much to admire in Michael J. Fox. He had the gumption to rise from poverty to the pinnacle of his profession. He found the good in a bad diagnosis. He refused to let a miserable disease make him miserable. He escaped the escape into alcoholism. He admitted his shortcomings and laughed — and makes us laugh — at his stumbles.

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Alexithymia, the Parkinson’s Get Out of Jail Free Card

Monday May 16, 2016

Parkinson’s disease, ever the over-achiever, brings with it a host of symptoms. You’d think that gait disorder, freezing, tremor, micrographia, dyskinesia, depression, dystonia, hallucinations, apathy, drooling, loss of ability to talk, REM sleep disturbance and constipation, just to name a few, would be enough. But the list just keeps growing. The latest addition: alexithymia.

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We Make Them Together: Major Decisions in Caregiving

Monday May 09, 2016

7 years ago my husband of 53 years was diagnosed with Parkinson’s. We made some major decisions along this path that have assisted us in coping with this progressive disease. I was asked to share them.

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Boxing is cool

Friday April 29, 2016

Boxing is cool. Not just because you can hit the heavy bag, but because we're expected to respect and follow the discipline. And wearing wraps on your hands makes me feel totally [hardcore]!

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Safety with Style: House Renovations you can hold on to

Monday April 25, 2016

Instead of simply dictating what to install and where, I tried to give the contractor a sense of some of the challenges of PD. I figured that if he understood the movement disorder better, he’d be able to come up with suggestions.

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Book review: On My Own

Friday April 15, 2016

Content Warning: Personal account of Voluntary Stop Eating and Drinking (VSED) and losing a spouse to Parkinson's

[This] is a realistic book that many who have Parkinson’s or who love someone with Parkinson’s will want to read. Some may find it depressing to learn in so much honest detail about what this disease can do to people, and to the families of people, with the disease. It is not always a pretty story, but it is a lovely one.

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Shaken to the Core

Wednesday April 13, 2016

It’s started. But, I took an extra dose. Oh gosh, they’re looking. Where was I? Now it’s getting worse, because they’re looking. Make it STOP! Telling myself that is NOT working! Now, I’m rambling. I’m just going to close.

“So how did I do on time?” I asked. Out of a 10-minute presentation, “It was 5 minutes.”

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Isolation and Parkinson's Disease, The hiding and the hidden

Friday April 08, 2016

Studies have found that social interaction lessens depression, a common problem associated with Parkinson’s, and that interactions with family and friends increase mental stimulation. These, are well-recognized factors in their importance in coping with PD.

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Camp Brian Interview

Friday April 01, 2016

It’s towards the end of 2015. The sound and the sky are a contended gray. They poke out from over the hedges, and over the warehouse of the carpet store next-door. My dad and I are in our usual places: blue recliner and blue sofa (respectively). The sofa is velvet; it’s also my brother’s favorite resting place, when he visits from school. ...
Bette Jane: So, let's start from the beginning.

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Safety with Style: House design ideas you can hold on to

Friday March 25, 2016

Contemporary or dating back a century, wood floors emit a warm invitation to enter, slip off your shoes, glide in. Those of us with movement disorders, however, don’t ‘slip off’ our shoes. We sit down. We unlace. We tug. And we shuffle more than glide, unless there’s a rug involved. Then we’re likely to trip.

That’s when the “hard” part of hardwood floors takes on meaning.

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