NWPF

PD Community Blog

A Sea of Troubles

Tuesday October 01, 2019

“To be, or not to be: that is the question: Whether 'tis nobler in the mind to suffer the slings and arrows of outrageous fortune, Or to take arms against a sea of troubles, and by opposing end them?”- Shakespeare, “Hamlet” Warning: this post discusses suicide.

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Living with the Losses of Chronic Disease

Friday September 06, 2019

Most of us will, at some point in our lives, watch a loved one steadily diminish by illnesses like Parkinson’s, multiple sclerosis, Alzheimer’s, fibromyalgia, rheumatoid arthritis, and many others. For some of us, the process happens to the person we see every day in the mirror.

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Things To Avoid Saying to a Person with Parkinson’s

Thursday August 29, 2019

"What can I say? It’s a free country. You can declare, utter, intone or even verbalize whatever you like (Almost). But if you want to spare your friend/acquaintance/loved one who has Parkinson's some silent tooth-gnashing, here are a few things to avoid saying to them."

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"Mutual Honesty": A Conversation with Sailor West

Wednesday August 14, 2019

In case you've missed her, Sailor West has written wonderful interviews with community members, including her friend Debbie and her dad. This time, Sailor's the interviewee! Read our intern Emma's in-depth conversation with Sailor to learn how the soon-to-be high school senior navigates life impacted by Parkinson's - and life that's not!

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Al Greenwood's Journey with Parkinson's

Wednesday August 07, 2019

Al’s a pretty unique guy—he's also Patient 001 for a new type of DBS battery. In this post, our Programs & Communications intern Emma shares about DBS, Al, and living a life with HOPE in the NW Parkinson’s community. 

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You Say You Want a Renovation

Tuesday July 30, 2019

"After fifteen years with Parkinson’s and only fifteen months into a home remodel, I was surprised that the questions are the same.


How long?


How are you holding up?


How’s your marriage?


To transform a 1970s ranch into a cozy house was daunting. It had minimal insulation, questionable chimneys, sketchy wiring and windows that froze on the inside. And, there was another caveat, a double-header: Our new space needed to be Parkinson’s-friendly, but without looking like it. Aging-in-place smart (degenerating in place somehow doesn’t hold the same ring). Safe, but with style." Read more about Renee's experience throughout the aging-in-place renovation process!

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Wile E. Coyote, Spinoza, PD and Me 

Tuesday July 23, 2019

"The moment I realized there was going to be trouble, there was no time left to avoid it. I was rolling along at a respectable rate on a favorite part of a mid-town bike path, a  bridge over a bright stream flowing through a lush greenbelt. The sun was out and the beta endorphins were flowing. 

As I cruised across the bridge, my mind wandered. So did my bike." Read what happens next...and more in Peter Dunlap-Shohl's latest blog post!

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Get Ready for NW Parkinson's Day Spokane!

Tuesday July 16, 2019

NW Parkinson's Day Spokane is around the corner! Ahead of September 7, check in with Halle Goodwin, Regional Director, and Rachel Valdez, community member. In this video, learn about the activities of NW Parkinson's Day, the location, how to build a team, and more. 

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Living with Parkinson's in the NW: How to Plan for Wildfire Smoke

Tuesday July 09, 2019

As the Northwest region faces wildfires and smoke events, we'd like to offer preventative strategies for folks impacted by Parkinson's. Dr. Sverre Vedal, pulmonary physician and epidemiologist, shares resources and practical tips for navigating the health effects of wildfire smoke. Read the interview here!

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Dog Person

Monday July 01, 2019

"Coral, if you haven’t met her, is the soul of a large, fierce and proud beast, just a step removed from the wolf, inhabiting the body of a tiny, freckled 11-pound dog who looks as if she should be walking down 5th Avenue in New York City, gussied up in a designer canine sweater.

Looks were never more deceiving." Read about Coral, and how she inspires her owner to be more of a dog person, in Peter Dunlap-Shohl's latest.

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