NWPF

PD Community Blog

Parkinson's and Profanity

Monday November 27, 2017

As I’ve pointed out before, Parkinson’s has its own vocabulary, if not its own language. This ugly brute of a disease is adorned lavishly in terrific words and phrases, like a warthog wearing pearls. I hate experiencing festination, emotional incontinence, dyskinesia and postural instability, but as words, they are colorful, have interesting etymologies, and are esoteric yet highly useful on their turf. For a word-hoarder, connoisseur or aficionado, they are irresistible.

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Parkinson's Pain by Proxy

Tuesday October 17, 2017

There is a moment familiar to most of you who have had Parkinson’s Disease for awhile. It’s the increment of time between the failure of every frantic effort you could make to avoid a fall, and the impact. It’s when you see the floor rising up to meet your accelerating mass, with nothing you can do to stop it. A moment that is given over to the message “This is going to hurt.” The only questions are how much, and how long.

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Autoimmune Diseases

Monday September 25, 2017

Full disclosure: I am not a doctor, nurse, therapist or any type of medical professional. I do, however, live with a chronic (it’s never going away) and progressive (it’s going to get worse) disease: Parkinson’s. What I am about to share comes from personal experience, medical research, media and other reference material. Any errors of fact or conclusion are mine.

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The Most Interesting Men in the World

Monday September 18, 2017

The Most Interesting Man in the World was recently diagnosed with Parkinson’s and said, “I don’t always get a disease, but when I do there is no cure.” Not really, but that’s what passes as PD humor.

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What Dreams May Come…

Monday September 11, 2017

Willie the Bard—better known as William Shakespeare—was not only a genius, he was prescient. It may be that he was one of the first sleep scientists. The entire quote from Hamlet demonstrates a knowledge of sleep that didn’t become common knowledge until the 20th century, more than 300 years later: Willie the Bard—better known as William Shakespeare—was not only a genius, he was prescient. It may be that he was one of the first sleep scientists. The entire quote from Hamlet demonstrates a knowledge of sleep that didn’t become common knowledge until the 20th century, more than 300 years later:

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Book Review: on Carrying the Black Bag

Monday August 28, 2017

Dr. Tom Hutton spent most of his professional life as a neurologist in Texas, teaching medical students at Texas Tech and seeing patients, many of whom had Parkinson’s. Carrying the Black Bag is a bagful of stories. Some are autobiographical, such as the long chapter about how a thumb injury in a high school football practice led to his becoming a doctor rather than a lawyer.

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Make Anger Your Ally

Monday August 21, 2017

One thing I did not expect to feel when I was diagnosed with Parkinson’s Disease was anger. Terror? Well, yeah! Depression? I should say so! Disappointment? No jive! But anger? Anger at whom? And anger about what, exactly?

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The Parkinson's Life (You Should Be So Lucky)

Monday August 14, 2017

I know, I know it’s a counter intuitive title and for some, it may be right off putting. But recently, I’ve been reminded again that within every cloud there is that sliver of a silver lining.

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Distractible Me

Monday August 07, 2017

Remember the good old days when Parkinson’s Disease was thought to be a problem centered in the substantia nigra, a tiny structure in the deep brain? Good times! We thought if we could just discipline this wayward little piece of our mind, we could solve the problem of Parkinson’s. Now we are sadder but wiser, aware of changes elsewhere in the brain, and beyond, that tell us the problem is more widespread than we assumed.

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Parkinson's Takes Guts

Monday July 31, 2017

Back in the good ol’ days, optimistic and inexplicably naive types would write sentences like "Parkinson’s will be the easiest of the neurodegenerative disorders to fix, because the problem is centered in one tiny structure in the brain." This belief fostered the idea that the cure for Parkinson’s was just around the corner, leaving patients angry and bitter when the cure did not materialize.

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