PD Community Blog

Pulling the Plug

Thursday February 15, 2018

Recently, a pharmaceutical giant announced it was pulling the plug on its pursuit of new medications for both Parkinson’s disease and Alzheimer's. This announcement comes in the face of the fact that demand for treatments for both these afflictions, driven by the aging baby boomers, is set to rise sharply over the coming decades. The message is clear: “We aren’t anywhere close to figuring out how to treat these diseases. We give up.”

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Five Important Questions: How Do I Make the Best Decision?

Wednesday February 07, 2018

Do you have any decision in your life that you are struggling with? Maybe it’s deciding to attend that Pedaling for Parkinson's class at the local YMCA or join a support group. Or maybe it’s making a decision about transitioning your loved one into an assisted living community. Maybe fear is standing in your way, you don’t feel capable, or you aren’t sure if now is the right time. Making a decision can be tricky and oftentimes, a bit overwhelming. Here are five important questions to ask yourself when making a decision. Are you ready? Let’s get started!

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Love Your Body Week

Thursday February 01, 2018

Many of us, whether we have Parkinson’s disease or not, struggle with the feeling of wanting our bodies to be different. Love Your Body Week is an idea that started in All That Dance, a dance studio in Seattle, Washington and was later picked up by National Honor Society for Dance Arts who turned Love Your Body Week into a nationwide campaign. Love Your Body Week is about celebrating what your body can do and being positive towards your body.

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A Review on Parkinson Pete’s Bookshelves

Thursday January 18, 2018

Parkinson Pete’s Bookshelves: Reviews of Eighty-Nine Books About Parkinson’s Disease by Peter G. Beidler addresses an unmet need, namely a resource that Parkinson’s patients, newly diagnosed and those who have been afflicted for a long time, can turn to as they repeatedly ask the question, “What’s next?” It’s also an invaluable resource for professionals such as doctors, librarians and other professionals who routinely are asked for credible resources.

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Why me?

Thursday January 11, 2018

It’s inescapable. It haunts all your worst moments. It’s a puzzle you might particularly dwell on in the frozen twilight of a bleak winter morning. It’s the question “Why me?” elaborated with “What have I done to deserve this?” The worst part? There is no answer.

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Parkinson Voice Project

Thursday January 04, 2018

Watch this video created by the Parkinson Voice Project to find out how speech therapy programs like SPEAK OUT!® and The LOUD Crowd® impact PWPs. This video highlights the program located in Spokane, Washington at Eastern Washington University.

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NWPF: Your PD Partner

Thursday December 21, 2017

Listen to Melissa Tribelhorn, Interim Executive Director, speak about the organization's focus in 2018.

Listen to John Lapham, speaker at the 5th Annual Celebrate! Dinner & Auction, talk about what it is like to be diagnosed with young onset Parkinson's Disease.

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The Thief vs. A Superhero

Wednesday December 13, 2017

Parkinson’s Disease is a thief. It is insidious. It is sneaky. It is destructive. It sneaks up unsuspected and does it’s best to diminish one’s quality-of-life, self-esteem, and ability to be self-reliant.

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The Parkinson's Pandemic

Tuesday December 12, 2017

What is a “pandemic”? It’s a widespread epidemic, a high occurrence of a disease spread over a large area, crossing borders and draining resources on a huge scale.

What is the scope of the oncoming Parkinson’s pandemic? According to the Journal of the American Medical Association, between “1990 and 2015, the prevalence of Parkinson’s more than doubled and it is estimated that 6.9 million people across the globe have the disease. By 2040, researchers believe that number of people with Parkinson’s will grow to 14.2 million as the population ages and the rate of growth will outpace Alzheimer’s.”

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Parkinson's and Profanity

Monday November 27, 2017

As I’ve pointed out before, Parkinson’s has its own vocabulary, if not its own language. This ugly brute of a disease is adorned lavishly in terrific words and phrases, like a warthog wearing pearls. I hate experiencing festination, emotional incontinence, dyskinesia and postural instability, but as words, they are colorful, have interesting etymologies, and are esoteric yet highly useful on their turf. For a word-hoarder, connoisseur or aficionado, they are irresistible.

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