NWPF

PD Community Blog

Notes on Hope

Friday August 28, 2015

September 26, 2015 is the day the NWPF’s Annual HOPE Conference will be held. I, like many of you have already registered to attend. Since signing up I have found myself reflecting and initiating conversations on what hope means to us, PWPs, and to our care partners.

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Tug, tug, tug

Monday August 24, 2015

"What's it feel like to have Parkinson's?"

This was the gist of a conversation I was having recently with a friend whose father also has the disease. I enjoyed the conversation so much that it inspired me to make it my next blog post!

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Denial on Trial

Thursday August 13, 2015

Like I said, (and yes, I “protest too much,”) it’s not about me. It’s about you. I just hope you learn from my experience, acknowledge the facts, appreciate what you have and then live according to whatever seems to you best in light of reality. To live as though these things matter.

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Flowers in Our Hair

Monday August 03, 2015

My dad and I went to San Francisco a few weeks ago to meet with Dr. Phillip Starr, neurosurgeon and genuine human.

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Resilience: Bouncing Back from Adversity

Tuesday July 28, 2015

“Life doesn’t get easier or more forgiving, we get stronger and more resilient.” ― Steve Maraboli, Life, the Truth, and Being Free

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Summer Travel

Friday July 24, 2015

If your PD loved one has dementia or even just mild cognitive impairment, travel can be stressful. Travel is possible. Here are a few of the ways to make it easier.

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Tina Sawyer Steps Up Fundraising in Seaside

Monday July 20, 2015

I walk because I have something to say. I walk because right now I can. I walk because I want others to understand what PD is and the costs to the community. I walk because it's the right thing to do.

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The uncooperative patient

Friday July 10, 2015

I shouldn’t be writing this. I'm deep into the far side of the time I thought I had. My fingers should be either too stiff, too ridden with tremor or too wild with dyskinesia to find the keys. Yet they do, and I go on writing.

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To be in June

Friday July 03, 2015

June is something of a Dad’s Month. You may say, “Well, sure: Father’s Day. Doink.” In our family, this bundle of weeks has ranged from graduation to the US Open—all opportunity to acknowledge Dad. I’ll go so far as to say that we’ve exceeded the calendar’s authority.

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Pressure Sores

Friday June 26, 2015

Pressure sores are no small thing when they are left undiscovered and untreated. However, pressure sores can be prevented from happening and treatments are available under various conditions.

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