NWPF

PD Community Blog

Terry & Marian's Thanksgiving for Two

Tuesday November 13, 2018

Today's Tuesday with Terry is about two "T" words that go great together - turkey and Thanksgiving. Over the years, my mom and I have settled on a pared down version of Thanksgiving. It's just the two of us - my mom (old person) and me (starting-to-get-old person with Parkinson's) so we like to keep it simple. Read more for a Parkinson's friendly Thanksgiving!

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"Pilot to Co-Pilot"

Friday November 09, 2018

Alongside her granddaughter, Ellie, NW Parkinson's Board & Community member Gloria Gottesman has created a fantastic story about family, Parkinson's, and heroes. View "Pilot to Co-Pilot" - their video submission for the 2019 World Parkinson Congress in Kyoto!

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A Gem in the Healthcare Haystack

Wednesday November 07, 2018

NW Parkinson's community member Bill Clugston shares his positive experience with an unexpected medical care provider: students!

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Never Say Never

Monday November 05, 2018

I remember hearing someone (probably my old English teacher) say you should make your words soft and tender—you may have to eat them. I’ve been munching on the word 'never' for a while. 

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The Parkinson's Holiday

Wednesday October 31, 2018

So you didn't know that there is an official holiday for Parkinson's? Yeah, it’s Halloween (rim shot, or spooky groan, your call).


Halloween is the time of year we set aside to recognize the importance of ghosts and ghouls and things that go bump in the night. I don’t know about you, but in addition going bump in the night, I often go bump in broad daylight! 


The following content describes an individual experience of Parkinson's, and we recommend that readers defer to their own comfort level with the subject matter before reading this post. NW Parkinson’s strives to recognize  and engage with a variety of perspectives and experiences relating to Parkinson’s. The below represents the opinions and judgements of the author only, and does not necessarily reflect those of Northwest Parkinson’s Foundation.

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Melissa’s Vote Note

Monday October 29, 2018

It’s the season to vote! And, in light of Open Enrollment, I'd like to share how Northwest Parkinson’s achieves the “advocacy” portion of our mission. One of our goals is to positively impact the community’s access to specialty care throughout the Northwest: here's how we do it. 


 

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Baguette and Red

Friday October 19, 2018

"There is a group of people that do things for the right reasons. They may have no direct link to Parkinson’s or some other cause but choose to make a difference anyway. They’re known as volunteers and rarely get the recognition and plaudits they deserve. For them, that’s OK—that’s not why they give time and effort to help others. What follows is a story about two of these people—two volunteers that want to make a difference."

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Pete Beidler: The Man Behind the Books

Monday October 15, 2018

Pete Beidler is an author, husband, dad, grandfather, teacher, friendhe's also an extraordinary member of the NW Parkinson's community. He shares honestly on literature, life, and death with Parkinson's. Learn more about the man behind Parkinson Pete's Bookshelves: Reviews of Eighty-Nine Books about Parkinson's Disease.

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Decisions

Thursday October 04, 2018

Sometimes we're faced with making big decisions. When you also have Parkinson's there may be more to consider. Bill Clugston shares about his decision to retire early and take control of his Parkinson's. 

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Reimagining Our Approach to Parkinson’s

Monday September 24, 2018

Parkinson’s has no scruples. It doesn’t play fair. It hits below the belt. It has no use for the Marquis of Queensbury Rules nor the finer points of dueling etiquette.


What if instead of framing our situation as a battle, we made it our goal to live as well as possible with Parkinson’s? This seemingly more modest aim is actually attainable, and a more humane approach for those of us in the struggle.

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