PD Community Blog

Pay It Forward

Monday March 20, 2017

If not us, who? If not now, when? Those two questions have become my personal mantra. As a person with a chronic (it isn’t going away) and progressive (it is going to get worse) disease, I believe I have a personal responsibility to participate in medical research—even though it is doubtful that I will ever see the benefit.

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Book Review: Dealing and Healing with Parkinson's Disease and Other Health Conditions

Monday March 13, 2017

Long noted and well-respected voices in the Parkinson’s community, Karl and Angela Robb have applied their many years of knowledge and insight into creating a companion workbook for Karl’s successful A Soft Voice in a Noisy World. Diagnosed with Parkinson’s at age 23, Karl’s entire adult life has been lived as an experiment in how to live a fulfilling life in spite of, or actually, because of, his relationship with Parkinson’s.

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Parkinson's Rules

Monday February 27, 2017

Over the 14 years following my Parkinson’s Disease diagnoses I have developed a body of rules for living with PD. These are not “guidelines” or “suggestions.” The violation of these rules can result in severe consequences, up to and including death, of you, or someone accidentally standing in your vicinity. What are these rules, and what do you need to know about them?. Read on, and we’ll run through a few.

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Book Review: Everybody Has a Window and Aisle Seat

Friday February 17, 2017

The first question a prospective reader will want answered about this book is what its title means. Mary Huston McLendon seems to believe that it is better to choose the window seat on the journey with Parkinson’s.

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10 Things You Don't Know About PD

Monday February 13, 2017

When it comes to Parkinson’s Disease, many folks have a mental image of an elderly man, stooped and hunched over, with a slow, shuffling gait, a cane, soft spoken and with slurred speech—maybe even drooling. While true in some cases of advanced Parkinson’s, there are simply too many other symptoms and situations that render this stereotype incomplete and inaccurate. What follows are facts to help dispel the myths.

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Introducing NWPF's New Social Services Manager: Sarah Winter, MSW, LICSW

Tuesday February 07, 2017

"NWPF has a wonderful culture of responsiveness to and engagement with the Parkinson's community. I hope to continue this work by building bridges with individuals, providers, and communities throughout our region so that people affected by PD can live their best lives."

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Davis Phinney Foundation for Parkinson's: Preparing People to Meet Someone with Parkinson's

Monday January 30, 2017

"While I’m not afraid to tell people about my dad’s Parkinson’s at this point in my life, I am very deliberate about how I prepare people to meet him."

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Lies That Parkinson's Disease Told Me

Monday December 19, 2016

Yes, I should have known better than to trust Parkinson’s Disease. PD is not our friend. It spends its time and energy devising ways to mess us up. There seems to be no part of the human experience beyond the reach of this tireless troublemaker. I know this. So I should have been on my guard. But I believed when it whispered the following lies in my ear.

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Managing the Holiday Blues 2016

Monday December 12, 2016

Many among us will indeed rejoice. Unfortunately many will not. As mental health professionals remind us every year, vulnerable individuals will experience the holiday as stressful, an occasion that activates (or augments) emotions such as sadness, loneliness, feelings of alienation — “the holiday blues.”

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Who Was That Masked Man?

Monday November 28, 2016

“You lookin’ at me?” The question was sharply confrontational. The inquisitor was a fit-looking and obviously volatile young man. The setting was a dimly lit street outside of a bar in a small town in Wyoming, and I was out past my bedtime.

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