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Utah Parkinson's disease registry is first of its kind in the country

Tuesday May 26, 2015

The Utah Parkinson Disease Registry, at UPDR.org, opened earlier this month. It's an online repository for reports now required of health care providers. Patients, too, can submit their own names and records to the website.

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Coping With Caregiver Guilt

Friday May 22, 2015

Caregiver guilt strikes from time to time, without regard for how utterly exhausted you feel. “Am I doing enough?” you wonder. GUILTY!

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Doctor's Visits

Friday May 29, 2015

A caregiver's life includes many doctor's visits. There's the primary of course, then there are all the specialists. In the past, this blog has discussed how to choose a doctor. This blog is about how to get the most out of each doctor’s visit.

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Get Moving!

Tuesday May 26, 2015

There is an ongoing discussion regarding physical activity and Parkinson’s. We often hear quotes that exercise will help, if not outright cure, many of the symptoms we face with PD. And I believe it’s true. I have lived the reality of feeling better while exercising. My joints move better, my whole body works better and I have less anxiety when I’m active.

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Lunchtime LaboratoryMore Videos

Presenter: Jennifer Sheridan Palute


Logo - Webinar ProgramNWPF & PRO present the June installment of the Lunchtime Laboratory Webinar Series.

 

Thursday, June 11, 2015 
Noon PST

This Lunchtime Laboratory webinar brings a special update for the Parkinson's community from the Parkinson's Action Network.

We all know that data on Parkinson's disease is sparse at best, but do you know why? During this special presentation, learn the history of data gathering for Parkinson's, current estimates of Parkinson's numbers and why it's so important to have better numbers for research purposes. You'll also find out about a bill going through Congress and what you can do to help it pass.

Register here!

Jennifer Sheridan Palute
Director of Policy, Parkinson's Action Network

Jennier is responsible for developing and advancing policy issues important to the Parkinson's community and oversees the Parkinson's Action Network (PAN)'s government relations team. Jennifer joined PAN in July 2012 as the director of policy development. Most recently, she was the associate director, federal affairs at the Alzheimer's Association, where she represented the federal policy priorities of the organization before Congress, federal agencies and community stakeholders. Previously, Jennifer worked at PAN for four years as the senior government relations manager. Jennifer received a bachelor's degree in policial science from James Madison University and a master's of public policy degree from George Mason University. 

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The Parkinson's PostMore Issues

Parkinson's Post, Winter 2015

In this issue:

  • Parkinson's in Seattle: Gloria's Story
  • The ED Corner
  • World Parkinson Congree
  • Artwork of Julio Angulo
  • Save the Date for HOPE™ Conference 2015
  • The Face of PD
  • The Tremolos & Music Works Northwest
  • Tribute Gifts
Read this Issue (pdf)

Tim Hague's Blog

Thoughts about Parkinson's from "Amazing Race Canda" winner, Tim Hague, Sr. Hague 0154 

Get Moving!
05/26/2015
There is an ongoing discussion regarding physical activity and Parkinson’s. We often hear quotes that exercise will help, if not outright cure, many of the symptoms we face with PD. And I believe it’s true. I have lived the reality of feeling better while exercising. My joints move better, my whole body works better and I have less anxiety when I’m active. Read More

Read Tim's Blog

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