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December Blog

Losing a Step The moment it happened, I didn’t feel panic. No ominous music disturbed the calm of my afternoon walk, no menacing shadow fell across my path. No one whispered “run!’ urgently in my ear (Much good that would have done, with Parkinson’s, running is not my strong suit.)  The temperature did not drop. The birds continued to…

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November Blog

Life Unfinished I used to tell myself that after 30 years of life, every extra year was gravy. A look at life lengths over the years backs me up. Life before civilization was “nasty, brutish and short” in the words of English social philosopher Thomas Hobbes, and the numbers are grim.  According to web site very well health “After…

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October Blog

Can you get used to Parkinson’s Disease? After 20 years with a Parkinson’s diagnosis, it seems like a reasonable question. Can you get used to Parkinson’s Disease? Does the passage of time soften the blows? Does memory of your prior self fade, and are the wounds inflicted by the disease healed by time? Does the unsteadiness, the quietness of…

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The Weekly 08.30.22

Parkinson’s News Updates Seelos Awarded Fox Foundation Grant to Study SLS-004   Parkinson’s News Today   Seelos Therapeutics has been awarded a grant from the Michael J. Fox Foundation for Parkinson’s Research to advance the development of its gene therapy candidate SLS-004 in people with Parkinson’s disease. SLS-004 aims to regulate the expression, or levels, of the SNCA gene, which provides instructions to produce alpha-synuclein, a key…

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September Blog

Beating the odds: Ganging up on Parkinson’s Disease My movement disorders specialist was a touch annoyed with me. I can see why. I was balking at following some advice she had given me, advice which was informed by years of experience and training, advice which I was, in fact, paying her to give me. But it wasn’t advice I…

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Pass to Pass Continued

Irene reported in on Pass to Pass Trips 4 and 5 between White and Chinook passes. The llamas favorite part was the chance for a dust bath! The people enjoyed the beautiful weather, spectacular views, wildflower blooms, lakes warm enough to swim in, participating in the teamwork required for rough trails and managing llamas, and many great conversations on…

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The Weekly 08.23.22

Parkinson’s News Updates   Photo by Hamza Bounaim on Unsplash Sleep Problems in Parkinson’s May Be Linked to Certain Medications Parkinson’s News Today Sleep disturbances are common in people with diseases marked by alpha-synuclein buildup, but they are especially problematic among Parkinson’s disease patients on dopaminergic medications, a study suggests.Parkinson’s patients tend to have more arousals during sleep and fewer normal sleep cycles than…

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The Weekly 08.16.2022

Parkinson’s News Updates Photo by Jack Finnigan on Unsplash Patients’ Depression Often Carries Over to Care Partners – Parkinson’s News Today More disability and higher levels of depression in Parkinson’s disease patients predicted an increase in burden and depression of their care partners, such as family and friends, over two years, a study concluded. The findings underscore the need to monitor the burden of…

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The Weekly 08.09.2022

Parkinson’s News Updates Photo by Gabin Vallet Physical Activity Linked to Larger Volume, Increased Health of Brain – Parkinson’s News Today Physical activity may be beneficial to brain health, including for people with neurodegenerative diseases such as Parkinson’s disease, by promoting increases in brain volume, a long-term follow-up study suggests. “Our study results indicate that even small behavioral changes, such as…

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The Weekly 08.02.2022

Parkinson’s News Updates Photo by sk on Unsplash More, Worse Parkinson’s Pain for Women Than Men, Study Reveals Parkinson’s News Today Women with Parkinson’s disease experience more and worse pain than men with the neurodegenerative condition, according to a new study that highlights sex differences in the prevalence and severity of these symptoms. Chronic pain, pain related to motor symptom fluctuations, mouth/face (oro-facial) pain,…

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