Important Advocacy Update for the Northwest Parkinson's Community
Dear Northwest Parkinson’s Community,
A historic piece of legislation was introduced July 28, 2022, in the U.S. House of Representatives that holds great promise for the Parkinson’s community!
The National Plan to End Parkinson’s Act (House Resolution 8585) was authored by Representative Paul Tonko (D-NY) and Representative Gus Bilirakis (R-FL), and this bipartisan bill unites the federal government and the private sector in developing a strategic plan to prevent and cure Parkinson’s and ensure those living with the disease have access to the care they need. This is the first legislation of its kind for Parkinson’s, and it will help steer the future of research, therapy development, and patient care.
With the House bill introduced, a Senate companion bill is being worked on and will be introduced soon.As is standard congressional procedure, this legislation must pass both chambers of Congress before it can be sent to the President of the United States for his signature.
Northwest Parkinson’s Foundation is a member of the Unified Parkinson’s Advocacy Council, a collection of nearly 30 Parkinson’s organizations that come together to help shape federal and state public policy in ways that support the Parkinson’s community. There will be many opportunities for all of us to engage our Members of Congress on this legislation and have conversations about the bill and its intended impact.
Collaborating with the Foundation is full of excitement and purpose. It’s incredible to see our local organization in action to foster a sense of connection and hope for people with Parkinson’s across multiple states.
Thanks again for all you do for so many of us who are on an uncertain journey without much of a roadmap. Your care and expertise create essential guideposts along with all of your colleagues you invite to participate.
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Volunteers are essential to our work. When you become a member of the Northwest Parkinson’s team, your time and effort support free programs and services that deliver access to specialty care; distribute free educational resources; host community events; raise awareness; and develop self-advocacy and system navigation tools. There’s a place for everyone here: we look forward to working with you!